ojovivo
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dirt enthusiast
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Peter Solarz
"I'm Dorothy Gale from Kansas"
TVSTRANGERTHINGS
titsay
Misplaced Lens Cap
Product Placement
Andulka
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if i look back, i am lost
shark vs the universe
Janaina Medeiros
d e v o n
hello vonnie
Show & Tell
Alisa U Zemlji Chuda
cherry valley forever
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@chronicallydeadly
Hello! This used to be a personal blog, but now it's just my chronic illness blog. I have multiple chronic illnesses and I've been in this community for years with one username or another.
I don't have a DNI, but I'll block you if you give me terf or anti vibes.
Main/discourse blog: @cisplus
Don't touch mobility aids without consent.
Don't touch our bodies without consent.
Leave service animals the fuck alone.
Why is this so hard for people to understand? What alien language are we speaking?
I'll help any disabled person who wants to fit their mobility aids with spikes or studs to ward off ableists touching them. I don't do great with touch myself, so I got friendly with spikes and studs.
The times I've needed to use mobility aids for either my broken ankle or for particularly bad flare ups from a pinched nerve stuck with me.
Don't touch mobility aids without consent.
Don't touch our bodies without consent.
Leave service animals the fuck alone.
Why is this so hard for people to understand? What alien language are we speaking?
#we are not novelty displays #we are human too
Don't touch mobility aids without consent.
Don't touch our bodies without consent.
Leave service animals the fuck alone.
Why is this so hard for people to understand? What alien language are we speaking?
Don't fucking move my mobility equipment away from me, I will bite you
Just so people know, epilepsy warnings aren’t about, like, purity culture, or online leftists acting as if disabled people are real. It’s about my mom
We human beings have discovered patterns of light and/or sound that kill some people and we should probably not have hissy fits about your right to fire a weapon at my mom. Like if you could put some text onscreen explaining the upcoming seizure-inducing patterns so that people can scroll away. That’s super fucking easy. i AM sorry that something as mindless as a tiktok edit could kill someone but hey, so could driving to work every morning, we all treat THAT accordingly (long, pointed stare. because yes we had better be treating that accordingly too)
The casual abundance of Thing That Kills People doesn’t mean you shouldn’t avoid killing people
#all media should have epilepsy warnings like all food should have allergy warnings#and if you disagree then I'll kick your ass
via @angst-and-fajitas
I still can't believe we've just stopped talking about covid. it's so surreal to watch it destroy people's lives and most people have no idea what's happening. I can't believe we're putting kids in the position of getting covid over and over again.
if you have new weird symptoms or conditions popping up seemingly out of nowhere, it could very well be as a result of having had covid. if you're collapsing into bed at the end of your workweek, bone tired, it could be because of having had covid.
it causes multi systemic issues, damages blood vessels and the brain, triggers the development of chronic conditions and autoimmune diseases and more. pots and mcas are really common. symptoms can look a lot of ways because the impact of covid is multi systemic.
I know this is alarming. but I gotta say, having had postviral illness for many years, getting started on treating these things has improved my quality of life significantly. there is no cure for a lot of it, but life can still be made better with the right medicine.
My local subreddit will periodically have posts that say "new mystery illness going around?" that are flat out just describing covid, but that totes can't be it amirite?
Mine does the same. Like what could it be!? Uhhhh what about the endemic virus that everyone ignores?
They should make bodies that don't hurt.
"you make everything about your disability"
Girl I can't even take a shit normally... OF COURSE EVERYTHING IS ABOUT MY DISABILITY WHEN IT AFFECTS EVERY. SINGLE. ASPECT. OF. MY. LIFE.
things that make life easier, whether explicitly a disability aid, like crutches and wheelchairs, or not, like dishwashers and dryers, should not be luxuries. people should be able to live life with ease without great expense and for many disabled people these items are not a case of being comfortable but of just being able to live at all.
when someone self diagnoses there's the possibility that they're wrong, unlike formal diagnosis which is infallible and never ever weaponised against anyone ever :)
> post about widespread type of ableism
> look at the notes
> #how are people so stupid #this is so demented #how smooth-brained do you have to be to act like this
> ok.
to be clear. even if those particular phrases weren’t ableist in and of themselves. inventing an ableist bogeyman who goes around Doing Ableism because they Don’t Understand Shit just isn’t a helpful response. on any level. ableism is a system of oppression with its own internal logic and reasoning. it is not a few people who don’t know better, and framing it that way takes away from the ability of disabled people to talk about the actual roots of our oppression. so maybe think about that also
most of these things are ableism toward people with intellectual disability
because people are so unbelievably and unapologetically ableist toward id people
it has been considered acceptable for decades to make fun of and reject id people, so even progressives do it
if you ask someone to think of an insult, the first insult they'll usually think of is an insult about intelligence. and they never question why that is. they never ask "how did we get here"
intellectual disability is often left out of discussion of ableism, despite a lot of ableism being about it
disabled people will even get upset when abled people assume they're id and will act like it's an insult, instead of getting mad that id people are treated that way
all the strabismus jokes on tv come from ableism toward people with intellectual disability
but every time i say this, people with strabismus miss the point. they say "i hate that people assume i have an intellectual disability"
if you have strabismus, people with your condition often ARE intellectually disabled because strabismus and id (AND autism!) are frequently comorbid. the problem here is that id people are treated badly. that is why, when people assume you are id, they treat you badly. what you should be getting upset about instead, is the fact that id people are treated that way
anyway, i believe it drags down disability advocacy that id people are not supported enough
i think that support for id people, and id/dd people in general, should be a pillar of disability advocacy, and i think it is piss poor, and antihistorical, that they aren't
developmental and genetic conditions, especially conditions where comorbid intellectual disability is common, are highly targeted by eugenics
also, i think the way people see bigots as "stupid people who are thoughtlessly evil" is connected to the fact that abled people view id/dd people as thoughtlessly evil, especially id/dd people who have issues with empathy, theory of mind, boundaries, consequences, and morality
but no one ever even thinks about how we're treated
lastly, "smooth brain" is an actual condition called lissencephaly
("what's id/dd?" look it up. and if you're autistic: you. it's you. you're the dd part.)
it's really understated* just how much myopia/hyperopia/presbyopia are disabilities that cause frequent issues in people's lives due to a combo of societal impacts & medical impacts
there are the obvious issues of cost, and when it comes to kids especially it is incredibly important to get them glasses if they need it when they're young, because failing to do so can permanently damage their ability to see for the rest of their life. (this is moreso with young children, because it has to do with the brain developing the ability to process visual information, but I digress) and obviously there are massive disparities when it comes to student learning etc.
but whenever I hear people talk about this, I rarely hear about how genuinely disabling it is just from a medical POV to have """somewhat""" bad vision (i'm aware there are plenty of people who have it way worse than I). I don't even have particularly bad myopia, and yet I can't read my phone without glasses. I absolutely couldn't write down anything on a piece of paper without glasses. glasses, though, give me all sorts of sensory issues + general frustrating alignment related issues (glasses frames are the bane of my existence)
and like. there aren't really any good options. soft contact lenses suck for various reasons. glasses kinda suck. hard contact lenses are meh and also kinda scary. I would not personally touch corrective surgery with a ten foot pole. it sucks. it all just sucks and I really despise that so much of my time and energy is spent dealing with devices just so I can make one of my main major senses function appropriately!!!!
*at least in the US
I didn't get tested in a long while but I'm at least -4.75 judging by the type of lenses I can wear. Something that's also absent from all these conversations is how hard it is to maintain health and hygiene. Without lenses, I can't see my skin well lower than upper chest level, so if something wrong was there, I simply wouldn't know without asking another person. One of the reasons why I switched from glasses to lenses was because I can shower in them.
“At least it’s not cancer!”
“Bruh, I think cancer would be easier at this point.”
Body awareness is absolute shit for chronic illness. “Become aware of your body. Pay attention to how your body feels” great now I’m noticing the bone aching soreness that is permeating my entire body, thanks for that. My mind was automatically filtering that out for my but I sure am aware of it now!
I need like the opposite. I need “leave your body entirely and forget it exists” meditation.
OK I'm going to be That Guy(tm) for a second
because I teach meditation and this is 100% objectively true If you're in pain, especially chronic pain, you are already way too aware of your body. Doing a meditation that is focused on your body is the opposite of helpful, and especially body scan meditation (the one that starts with notice how your toes feel and moves up through the body). Any meditation that is about focusing on a single thing to the exclusion of everything else I call black spot meditation (my term, but it works)
There is a meditation that is all about leaving your body entirely and forget it exists, and I call it white spot (I promise there's a reason I name them that). White spot is what I was doing when I would ride my motorcycle. It's about trying to maintain as much awareness of the world around you and not yourself. It's like situational awareness turned up to eleven. And just like with black spot, this isn't going to be good for everyone or every situation
The problem is that far too many meditation teachers have learned a method or two that work for them, and try to teach that as the One True Way. There are very few things that the right meditation can't make easier, but it has to be the right meditation for what you're trying to improve
(meditation is complicated. Anyone who says it's simple is lying)
(I'm not really any kind of a guy)
Adding another technique that’s bad for some: focusing on your breathing. I meditated with someone who has asthma and trauma around it. It’s good to recognize when something doesn’t work for you — even if it works for a lot of people — and to look for alternatives instead of shaming yourself about the technique not being for you
