Medical mystery? More like medical misery.

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@lesjoursdekiah
Medical mystery? More like medical misery.
Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.
Shout out to young disabled people. We exist.
Hey, if you’re not as mentally quick as you used to be because of your illness- that’s okay. If you’re can’t think as fast or handle as many tasks that’s okay. You aren’t stupid, you aren’t unintelligent, and you aren’t less worthy of love or respect. It’s okay that your brain won’t or can’t go back to how it used to be. It’s different now, but it’s okay.
I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀
Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
I don't know if other disabled people can relate to this, but when it comes to my identity, I'm disabled before anything else. I'm a disabled lesbian. I'm a disabled agender person. I'm a disabled student. A disabled worker. A disabled cat owner. A disabled lover and a disabled friend. And none of these are meant in a negative way either. The only exception to that is that I'm white before I'm disabled, with privileges I don't want to just deny and/or forget.
My chronic illness and disability simply shape the way I experience life in so many ways that it would feel wrong not to make them an essential part of me as a person. A part that I'm also still learning to accept of course, but that's realistically also never going to fully leave my side regardless of what I do.
Help me save up for this rollator🙏
I've decided to make a post to keep track of the funds I get for this rollator so that you guys can follow along on my journey to get it! As you've probably seen, I'm selling some of my crafts as well as asking for donations from my community to hopefully get this rollator! My cane isn't helping enough with my chronic back pain or dizzy spells, and my wheelchair is a super heavy clunky one from Amazon that is super hard to push myself in. I can't afford a custom wheelchair right now, so this rollator is my next best option! Then I'll be able to sit whenever I really need to. If anyone can donate towards my goal, it would be so appreciated! I'll leave my links below ♡ thank you if you read all this, and if you can't donate but still want to help, please reblog this post! It would mean the world to me, thank you ♡
paypal
cashapp
venmo
$3.12/$120
if you can't donate, please reblog!! ♡
your chances to do big things won’t end at any age. you’ve got time. you’ve got opportunities. being in your late twenties, thirties, forties, etc. isn’t the end.
Friendly reminder that not every chronically ill person can physically, mentally, or financially "try everything."
The "miracle cures" and the "well, have you tried this?" solutions are typically expensive and extreme. Most of us cannot afford to throw money around on something we have not even been advised to do by a medical professional. A lot of disabled people are in poverty and medical debt.
For a lot of us, if we try one of these extreme, experimental "miracle cures" it could end up with our health declining, to the degree that (for those of us who do this) we can no longer work, go to school, or even just take basic care of ourselves.
We are not as invincible as healthy people. Small things that might make someone feel a little unwell for a few days can impact us for our entire life.
So no, I have not "tried everything." Most people haven't. Most people cannot. Please stop doing the "have you tried xyz" thing at chronically ill people. Best case scenario it's a little silly, worse case scenario it's just salt in the wound.
Look, im not in the habit of asking for help. But my income has drastically dropped ever since my ex wife/sole caregiver decided to walk away.
I will be able to safely move back to my parents home at the end of April, but I am really struggling right now.
I could really use $30-$40 until I get my SSDI check next week so that I can buy food for my pets and a few essentials for myself.
My ex doesn't help with expenses anymore and I've explored several avenues to get cash for myself. However, I am limited in options due to my income and because my disability prevents me from working and earning money that way.
Any amount is appreciated and, as always, no pressure. Even if you just boost my post, it would be greatly appreciated. Thank you.🩷🩷
Venmo:
Zelle:
“what i want most is to live the rest of my life desperately wanting to live it.”
— Lord of the Butterflies, ‘The Day You Died Because You Wanted To’ by Andrea Gibson
do. not. put. effort. into. people. who. don’t. give. it. back.
If I had to heal from you, I’m not letting you back in my space.
Sometimes having mental illness is like living paycheck to paycheck but with your brain
this is a short list of mental health resources for people of color. they’re all in english, but feel free to request different languages. please let me know if any of the links are broken, or if there are any other issues with the content itself.
55 mental health resources for people of color.
therapy for black girls & women.
self care in the face of race-based trauma, written by tomi akitunde (content creator for black moms)
more info on mental health access for black people, indigenous people & latinx communities.
finding hispanic/latinx therapists on psychology today.
mental health resources for black, indigenous people & people of color.
asian mental health project.
national queer and trans therapists of color network
apisaa therapist directory
aapi resources for mental health.
south asian therapists.
more therapy resources and skills.
cbt worksheets from psychologytools.
cbt workbook (pdf)
DBT skills training (pdf)
DBT skills workbook (pdf)
fillable self care worksheet (pdf)
being mentally ill is so embarrasing how can you explain to a normal person that you had to psych yourself up for half an hour to like get off the floor