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After yesterday’s shenanigans in the garden my body is broken ... so I got some study done and now it’s time to rest. Although I have a list as long as my arm of things to do my body is saying nope not today missus!!! #thebloopixie #fybrowarrior #pathtowellness https://www.instagram.com/p/B_4_idpH7EV/?igshid=18zpftshki59q
What else do you do @altontowers when you can’t go on most of the rides because of your #chronicpain but crochet?! I’m an HSD, meningitis and fibromyalgia warrior but that doesn’t stop me having an amazing day with my sister and niece. 💖 💖 #toriastrinkets #fybrowarrior #fybromyalgia #hypermobilitysyndrome #edsawareness #meningitis #crochetaddict #lovecrochet #altontowers (at Nemesis (roller coaster)) https://www.instagram.com/p/ByAVzwbFdjs/?igshid=146r283hya1pd
I think I might finally be going on an upward slope now I’m on my second lot of antibiotics and I don’t know how many visits and conversations with medical so called professionals. Keep your fingers crossed for me as I’m really fed up of this now. Who would of thought a simple septoplasty to help me breathe could have gone so wrong? Well it is me so I guess all my family 😂 #toriastrinkets #stillpoorly #chronicwarrior #fybrowarrior #meningitissurvivor #lovemyjob #heartizan https://www.instagram.com/toriastrinkets/p/Bu_FMUaFy6O/?utm_source=ig_tumblr_share&igshid=9qvme5qryjcv
Ahhh sooo rock n roll we are. Here it is on a Saturday night and we’re in A&E getting a “buttload” of morphine. Literally. As in MAHOOSIVE needle in the butt thanks to a very rude fybro flare that upset my dinner ... all good though the staff here at York Hospital were so Loverly and understanding even wanting to put a plan in place with my GP for when it happens again. Thankfully they’ve said they’ve had enough of me for one evening and I can go home. Ouchy but happy Pixie xox #thebloopixie #fibroflare #fybrowarrior #yorkhospital https://www.instagram.com/p/Br_c03WHl5b/?utm_source=ig_tumblr_share&igshid=1eofj15k7xohc
#lupuswarrior #fybrowarrior #igotthis https://www.instagram.com/p/BrFwSddggy_lhb7ypgEpt1QmBeO7pbuvjYxFO80/?utm_source=ig_tumblr_share&igshid=1cx1sdlq67ko9
That moment when you get home and realise that the wind has kicked up clouds of dust in the house after you left a window open and sleep may be an issue for a few hours due to coughing until you spew and your vogmask is needed to sleep in if you have any chance at all ... #cfsmefybrolife #autoimmunewarrior #cfsmesurvivor #fybrowarrior #vogmask
Feeling accomplished!!! Last night my leg caved in. It hasn’t been that painful for about a year and in all honesty I was kind of expecting it what with all the running about and moving and stuff. I got round shopping with the help of my friend who started the vicious banter we always start to help us get through these moments. Poor checkout girly didn’t know what to do 😂😂😂 got home and was ordered to bed. Bless her all my shopping was away when I got up this morning. Major twinge of guilt this morning over it but I had to give myself a stern talking to and remind myself that she wouldn’t have done it if she couldn’t, or to make me feel guilty about it. “It’s what we do for family” rang through my head. I have to admit I am so grateful to her for all her help over the last couple of weeks. It’s been barmy really the last few weeks and I’m just able this morning to really get my head round everything. Popping things in their containers helps, it’s a zen kind of thing for me. Having my teas and coffee ready for the kettle to boil makes me very happy. There’s still loads to do and my body is very much reminding me I have to go easy and take my time and that’s ok. With each little job I do it’ll all get done and I may not be greased lightening like I used to be but life doesn’t have to be anymore. It’s time to kickback and do my thing in my own time with a brew and my feet up. #thebloopixie #thebloopixieozhq #bloosadventures #movingin #newbeginnings #lifesanadventure #cfsmewarrior #fybrowarrior #takingmytime #acuppamakeseverythingbetter
Having a lazy day today. Looking at my toes and realising they are probably useful fingers they are so long!!! Damn!!! #thebloopixie #lifeinoz #cfsmewarrior #fybrowarrior #chillaxing
