Hey, I don't know you but I saw on my For You page your post about potentially having Crohn's disease, and while I don't personally know much about it, I have a friend who was diagnosed when she was 4. And it was pretty hardcore for a variety of reasons, and still is.
But the fact that I wanted to bring to your attention is that it's only when she was 18 that the doctors who had seen her throughout her whole life figured out that her illness was NOT, in fact, Crohn's disease but something much rarer: chronic granulomatous disease. Her version of it was very similar to Crohn's disease, and reacted pretty much the same way to medication, that's why it was so hard to identify. So, maybe pay attention to that when you see healthcare professionals if you think it might possibly concern you?
As a bit of information that might be relevant, my friend is of Vietnamese descent and there are other cases of genetic... Problems in her family.
I'm telling you all that in hope that this information is useful, or even helpful to you, and I wish you luck in your medical journey. I'm doing so anonymously because I don't feel comfortable sharing stories about my IRL friends online.
Best of luck, take care of yourself <3
Thank you, anon!! I appreciate this, and while I don't think I do have it, I'll still post this for awareness, thank you for sharing a story!!! :D - StaringStarling <3
