Well, after the minor surgical procedures - rhyzotomy and epidural steroid injection - I had relief for about 2 weeks then back to square one.
They’d focussed only on the L5/S1 for the rhyzotomy, and flooded the whole area for the steroid epidural. Got referred to a neurosurgeon and she got an MRI instead of CT, got better images and it showed the L4/5 was actually the worst one and herniating on both sides now, rather than just the right side. Facet joints fully messed up (vertical instead of horizontal, fluid in joints, degeneration occurring).
So I had the micro discectomy surgery today. I’m staying overnight, possibly 2 nights, and recovery will be about 3 months for proper recovery. The aim is to avoid a disc fusion surgery if possible, so there’s a chance they may do another microdiscetomy in a few years to continue to avoid fusion.
I can’t sleep so I’m writing lol.
Oh, also, despite my terrible billing figures since March due to this injury and ongoing reliance on pain meds that leave me unable to do complex legal work, I still got promoted. I’m now a senior associate!
And I’ve picked up some pro bono work for a refugee advocacy organisation, which I’m excited about.
My husband was away for 3 weeks but got back last week and it was pretty hard managing Z (2.5 year old) with my back messed up and her getting super sick (when it rains it pours), ending up in urgent care with them saying she was almost at the point of needing to be tubed…. But thankfully we got it turned around just before that had to happen. Despite all of that, I actually had such good bonding time with her. Dadda is the fav so I don’t get to really do much for or with her when we’re both there together, she just wants him constantly. So it was nice for us to have more time together and she is so loving and affectionate and playful with me when the beloved Dadda isn’t there 🤣 I actually think she’s been a bit better with it since he’s been back, which is nice,
She’s also just…developing in leaps and bounds. Daycare said she’s bored so they’re moving her to junior kindy early (she’d usually go just after turning 3). She’s so smart and starting to really like… give opinions and notice surprising details of people and facts etc.
We did a pre-screening autism assessment and basically they said there are a ton of markers that are classic presentations in girls, but because she’s not delayed in any way (the opposite, she’s hyperverbal and apparently advanced beyond her peers) she would be unlikely to be diagnosed at this stage. It’s more likely the social emotional differences, rigidity etc. that were noted will come out more around pre-school or year 1 age and we can consider diagnosis then if needed. Meanwhile the screening psych is happy to work with us to give us tools and guidance on assisting her with some things like the rigidity/tendency towards perfectionism and the sensory and emotional regulation.
The tendency towards perfectionism at such a young age does worry me (psych said she seems to be very serious during play and sees that there is a wrong or right way of playing). I don’t want her to feel pressure or stress like that so young, and it just gets worse when formal schooling starts so I’d love to try to support her through gaining some more flexibility around that & model it better for her too (I’m exactly the same so I need to be more conscious of not modelling that to her or projecting it onto her).
Anyway, I’m not worried in general about it, I just wanna make sure we’re doing all we can do to work with how her little brain works; I can’t assume that coz I’m diagnosed that we will be the same, because every autistic person has different strengths and challenges. Also I’m pretty confident she’ll be ADHD too (from Dadda) and I don’t have any experience in that personally so I wanna make sure we’re taking the best approaches for her. I do not want her to feel like her experiences are doubted or dismissed or like she has to go through life masking so much that she doesn’t get a chance to figure out who she really is. It’s a crap way to live & isn’t sustainable. Authentic living is the only way to avoid constant burnout.
Anyway that’s my 11PM painkiller-fuelled rambling over and out!










