heating pads and knee braces

scout - 19 - he/they - adhd - autism - anxiety - plica syndrome - endometriosis - pcos - safe space for disabled people

[marauders4evr]

(ALT Text used)

Today's the anniversary of the Capitol Crawl - on March 12th, 1990, the disability rights organization, ADAPT, which is still actively fighting for disability rights today (adapt.org) rallied around one thousand disabled people to climb the steps of the, at the time, inaccessible US Capitol Building, to protest the delayed signing of The Americans With Disabilities Act (ADA). These protests gained a lot of media attention and public support, which directly led to President George H.W. Bush signing the ADA in July, 1990.

Many people may know this story (it has luckily been shared across multiple sources and media formats, including the Netflix documentary, Crip Camp), but what many do not know is that approximately one hundred people were arrested during these protests, five of whom showed up to the Washington DC probation office ... and the probation office was inaccessible. You can't make this stuff up. In fact, here are sources:

A great article on the Capitol Crawl: https://issuu.com/faircountmedia/docs/ada25_complete_book/s/145488

Link to ADAPT's Archive: adaptmuseum.net

Link to this specific newspaper article: https://adaptmuseum.net/gallery/picture.php?/76/categories

[ruinedchildhood]

[deanwinchesterapologist]

Who is taylor swift. Has anyone heard of john carpenter's "the thing"

[deanwinchesterapologist]

High potential for funniest thing a person could say on this post. Thank you so much

[point-maitimo]

All six tarot cards collected! 🌿 I decided to use white accents on elements that have an important symbolic role in each character's stories. My favorite picture out of the six is probably Karlach's card. And what do you think? Which card do you like best?

[crazy-minded-girl]

The eurovision channel posted Israel's song on yoututbe. DO NOT INTERACT WITH IT AT ALL. I cannot stress this enough. Do not watch it, not even to leave comments in favor of Palestine. Not even to dislike it. The algorithm doesn't work that way. Just report it. Make sure to do the same on any other streaming platform you use. Block the artist. Report her even. But DO NOT engage with the song in any streaming platform. Also don't use the hashtag eurovision.

[bootleg-nessie]

When you accidentally remove the load-bearing pierogi and the entire contents of the freezer come spilling out

[journey-to-discovery]

Hi I know it’s been over a year since I’ve been active on this blog but my joints seem to be deteriorating and I still have no diagnosis to help me figure out how to manage it better so right now it’s pretty much a guessing game of what will and won’t work. Anyway, I was wondering if anyone knew of anything like a knee brace you can sleep in? I know sleeping in braces can be harmful but I’ve been in pain so often lately and for such little things that I’m desperate.

[cellarful-of-noise]

let's discuss some riot fest stuff

i wanna finally talk about something that's been bothering me. i was at riot fest, i tried to make it to a decent place in the crowd but quickly realized that it A) wasn't going to happen and B) i was very quickly getting very fatigued, so i set out for my backup plan: the ADA seating that i had special admission for. when i got there and first saw the platform i realized that there were 40 maybe 50 seats. for a crowd of 12k+. 1 in 4 people are disabled, going by that statistic that's roughly 3k out of the 12k crowd. even if we slim that down and totally blind guess saying that hey, maybe only 100 or 200 people at riot fest were disabled to a degree that we couldn't stand well and needed disabled seating, 40 seats isn't anywhere near enough, especially when about half of those are going toward our companions/caretakers. i spent almost the entire show standing in overflow ADA "seating" waiting and hoping that someone else would leave in the middle of the show so that i could get in and finally sit down. about 3/4 of the way through the show someone finally left and i was able to go sit down. once i got onto the viewing platform i realized that it wasn't even high enough for me to see the stage, all i could see were the heads of everyone standing in front of the platform (yeah the platform wasn't even at a decent viewing distance because the hundreds of VIP attendees were put in front of the 40 seat ADA platform). don't get me wrong, i had the time of my life at riot fest, i got to see the band that saved me countless times, but riot fest's "accessibility" was also some ableist bullshit that they need to be made aware of. i'm pissed about it, my disabled friends who were there are pissed about it, i know that the band themselves would be pissed about it considering the fact that most of them have disabilities themselves. it's unacceptable and just adds to the total shitshow that was riot fest. and if the fest themselves somehow see this: you need to fucking do better, if you claim to be accessible then fucking be accessible, don't leave disabled people standing for who knows how long because you only have 40 seats for us.

[early-sunsets-over-batterycity]

This this this ^^^

It was really gross frankly. There was no lighting in the audience section either so getting from the entrance itself to the ADA seating was one hazard after another of tripping over whatever was in the dark be it drunk concert goers or someone’s bag they left laying on the ground. I don’t think I need to explain how much that sucked navigating with a cane.

They also didn’t seem to tell half the staff where the disabled seating WAS either. I was trying to ask for directions and not a single person knew what I was talking about. By the time I found out where I was going there were no more seats and I had to stand in a line to wait for disabled seating to be available.

Anyway seeing MCR was amazing, but I felt really unsafe and scared for a majority of that experience.

[journey-to-discovery]

i know i’m not very active on here but i’m reaching out to the disabled community of tumblr to ask if anyone has any recommendations for pain relief gloves? i’ve been having a lot of pain in my knuckles lately (i’m suspecting arthritis) and i know it’s only going to get worse as it gets colder so any recommendations would be very appreciate!!

[journey-to-discovery]

hi i’m once again asking anyone for recommendations and even if you don’t have any pls reblog so more ppl can see this. it’s getting to the time of year where it’s constantly between 50 and 60 degrees in my room so my joints are really hurting

[journey-to-discovery]

i know i’m not very active on here but i’m reaching out to the disabled community of tumblr to ask if anyone has any recommendations for pain relief gloves? i’ve been having a lot of pain in my knuckles lately (i’m suspecting arthritis) and i know it’s only going to get worse as it gets colder so any recommendations would be very appreciate!!

[journey-to-discovery]

hey i haven’t updated here in a hot minute. a lot has happened over the past few months. i’ve started seeing an endo and an obgyn. i got put on a few more meds. the big thing is i got diagnosed with both pcos and endometriosis so we actually know what’s going on now. it still sucks but we’ve got a good treatment plan lined up and i’m hopeful that this will lessen my pain and discomfort

[journey-to-discovery]

i got more blood drawn 3 days ago and they said results would be ready in a day or less and i still haven’t heard anything so i’m kinda worried

[journey-to-discovery]

i’m so tired lately. i just want some time to relax. to just be. i just want to not be in pain for one day. i don’t think people realize how exhausting just existing can be for disabled people.

[journey-to-discovery]

health update

hello everyone. i’ve been having medical issues this week. i just want to preface this with the obvious tw for medical stuff and also a tw for menstruation and if you don’t like stuff that’s too personal this also might not be for you. (update below the cut)

so basically, after four months of random days of spotting and intense cramps that feel like i’m quite literally being stabbed but no period, i got my period this week. at first i was kinda excited bc that means that something is kinda back to normal, but then things got weird. i bled through my underwear and my pants three times in one day even though i was wearing the heaviest and thickest pad that i could find at the store. this never happens. these pads last me half a day but i was bleeding completely through them in 2 hours. i was passing clots that were as big as two of my fingers if i had to estimate. when i was in the shower my flow wouldn’t even lessen at all and normally it almost completely stops while i’m in the shower. i was, reasonably so, freaking out because none of this was normal. i ended up having to wear two pads and a tampon at all times this week which would last me for about 2-3 hours. i got 5 vials of blood drawn on wednesday and the doctors ran a bunch of tests. my results came back today and yesterday and i don’t have any of the conditions they tested me for. i know i should be relieved but i’m not because to me that just means that i still don’t know what’s wrong with me. however, i’m on birth control and iron supplements now to help regulate my body. nobody’s really sure what’s gonna happen next but i made this blog to rant about my medical issues and log my journey through the stuff going on with me so i wanted to make this update post.

[journey-to-discovery]

sometimes i feel like i’m on the verge of a meltdown but i know that if i had a meltdown i’d get in trouble so i just bottle everything up and right now is one of those moments and it feels like shit

[journey-to-discovery]

it’s totally valid to not want kids because of your disability and i’m tired of able-bodied people saying that it’s not and that not wanting kids because of a disability just pushes ableist narratives. i knew that i didn’t want kids when i was in 8th grade because of my periods that were so bad that i would nearly pass out in the school bathroom after dry heaving over the toilet. i dreaded having my periods because they were so incredibly painful and i knew that if i got my period at school i would be spending the day in the nurse’s office because i couldn’t stand up without collapsing. even just sitting up instead of laying down made all the color drain from my face and made me feel like i was going to vomit. i left school early because of my period so many days that i wasn’t allowed to anymore. i was 13 years old and having to deal with this once a month and it was pure hell for me. if just my period was this painful, i would never want to go through childbirth. my periods are still this terrible (when i get them). even when i’m not on my period i have horrible abdominal pain that i can only describe as feeling like i’m being stabbed.

It is 100% valid that i don’t want children because of this and not wanting children because of this doesn’t push an ableist narrative, it shows how tiring living with this can be and how it completely changed my life

[journey-to-discovery]

i just want to add onto this and say that i’ve been ashamed of this for as long as i can remember. people telling me that having these feelings was pushing an ableist narrative made me feel shameful and alone and guilty for having feelings and making major life choices based off of something that affects my life in a major way. i don’t want anyone else to have those feelings of shame and guilt because of this so if you’re a young person (or even if you aren’t) and you have feelings similar to this or are making a life choice, whether it’s major or minor, based on your disability: don’t feel ashamed. don’t feel guilty. our bodies (and yes, this can include your mind) are made in a way that makes so many things harder for us, and making a life choice based on that doesn’t make you weak or a perpetrator of ableism, it makes you strong for making choices that will help and benefit you rather than doing what society thinks you should do.

[journey-to-discovery]

it’s totally valid to not want kids because of your disability and i’m tired of able-bodied people saying that it’s not and that not wanting kids because of a disability just pushes ableist narratives. i knew that i didn’t want kids when i was in 8th grade because of my periods that were so bad that i would nearly pass out in the school bathroom after dry heaving over the toilet. i dreaded having my periods because they were so incredibly painful and i knew that if i got my period at school i would be spending the day in the nurse’s office because i couldn’t stand up without collapsing. even just sitting up instead of laying down made all the color drain from my face and made me feel like i was going to vomit. i left school early because of my period so many days that i wasn’t allowed to anymore. i was 13 years old and having to deal with this once a month and it was pure hell for me. if just my period was this painful, i would never want to go through childbirth. my periods are still this terrible (when i get them). even when i’m not on my period i have horrible abdominal pain that i can only describe as feeling like i’m being stabbed.

It is 100% valid that i don’t want children because of this and not wanting children because of this doesn’t push an ableist narrative, it shows how tiring living with this can be and how it completely changed my life