Be Loud About Things That Are Important To You

I want my vlogs to remind people that they can achieve great things, a life full of positivity and resilience- new to this !! living my best life in a pink chair at 26 (that’s right don’t let your age chose your favourite colour 🤣) bubbly, quirky, let me know what you think of my content . Super love 💋

[littlemj]

Riding the covid wave

Having a illness which for me has remained the same for a long time with the exception of recurrent pneumonia/a cold left me terrified of getting covid because I am the fatality target, as I have SMA type 2 (Spinal muscular atrophy type 2) which renders me wheelchair bound (not that I say it like this I believe my wheelchair is a mode of transport not a way of life) so the moment I took the RAT test I wandered around ready to attend my doctor’s appointment about my god awful leg pain and eat lunch unknowing the pain was for one reason that would hone in on me in 15 minutes the big bang COVID I was shocked, freaking out bursting into tears the equivalent of a dramatic crying mess. I was mostly annoyed because I am the definition of a people person, I can only operate solo for 3 hours without feeling deflated like I need human interaction, or I may well end up like ET so it’s weird reflecting that I did in fact ride it solo for a week! Only seeing support for the bathroom and food and the occasional moment where my support/friend lee-Ann sat in my covid house glued to season 9 of keeping up with the Kardashian which she now loves. My covid journey doesn’t even come close to being the hardest points in my life it ranks less than a cold for me (I can say this with absolute certainty as I had a cold which lasted 6 weeks only 2 weeks prior so covid was set to have me puss in boots style shaking in  my boots) So I built the taj mahal architecture Lego, chilled with my dog Riott, ordered uber eats for everyone only to have mine spill everywhere that p me off 100,

binged Kuwtk, ate healthy, started and didn’t finish another art piece and rode the covid wave of occasional breathlessness which lasted 20 minutes on two separate days calmly relaxing in the sun refusing to feed into this sickness just as I had at 5 as I nearly lost my life from pneumonia) Covid shattered me not physically but emotionally as I couldn’t attend my friend of 10 years engagement party as I tested on the day I was set to fly (I chose not to fly as covid was everywhere unknowing I was about to be positive myself) she ended up with it also from the engagement so this was all a bit of a plot twist, I am thankful I didn’t get anything remotely close to the level of intervention I require with pneumonia as I didn’t have access to physios and oxygen (I panic brought a cough assist machine as this is the reason I have survived a cold, pneumonia with its paired bestie amoxicillin the dynamic duo which has allowed me to continue being the living, rolling bad b I am. I sneezed enough to infect an entire population I literally sneezed for a week straight, and this along with my aching legs was unbelievably exhausting I had hoped for a dvt at least at that point I saw it could be treated but I had to wait out the negative result and with it brought back my regular leg, complexion and taste (I couldn’t taste for 2 days that was bizarre that was a deal breaker for me I love food! I wasn’t game enough to chow into an onion so sorry to disappoint lol, to make this a little bit more raw I woke day 3 looking like id squared up to some boxers and lost miserably as my eye was a puffer fish visual this scared me as I love makeup and vein me was unable to rectify puff zone so I’m glad it decided to jump ship) but honestly I’m thankful that sneezing, slight breathlessness, tiredness, puffy eye, taste problem was the worst I got because I could have been a fatality, I’m glad I had my cough machine close if I needed and I’m glad I tested myself as I honestly believed I had a dvt and my sore throat was a nothing and somebody else could of copped the full front of this pandemic from me brushing it off, I don’t want people with my condition to be terrified this could be your end because every day is an opportunity a chance to be amazing and do great things so have a little faith in your body because disabled or abled body doesn’t make you less or more covid taught us that so ride the covid wave and know that when its over you’ll look back on iso as a moment in life while you move on to travel, learn and be unstoppable because covid cant stop our goals but simply pause them for now.

[littlemj]

covid wave

[littlemj]

Riding the covid wave

[littlemj]

Why I find peace in my diary , it helps process all emotions and an important tool in seeing how far you have come 💕

[littlemj]

Each day is an opportunity to make change 💕

[littlemj]

Make changes you’ll future self will thank you 🙏💕

[littlemj]

Don’t let others clouds dull your sunshine ☀️

[littlemj]

Start a diary 💯

[littlemj]

Get everyday 💯💋

[littlemj]

Mindset is the strongest gift

Michaela Broderick

[littlemj]

Not everyone has the easiest family to deal with so I wanted to give some insight into how I’ve overcome challenges 💋😍

[littlemj]

One of my greatest flexes in life is my ability to write with my mouth, I lost the function of my hands to write when I was around 5 or 6 I have memories of textas being sticky taped in my hand but that’s the only memory I have of deterioration of my hands, I believe I was taught how to write with my mouth by my Teacher assistant jane , today I decided I would attempt to write with my hand only to have this hilarious result.

My greatest party flex is my different ability to write, I work as a presenter in schools for a fairer world about the negative affects of discrimination by creating a safe space for students ton ask all there burning questions for those who are differently abled, gender or other varied characteristics of people who are often the victims of taunting because people become to scared to be open and curious so I instruct students to try writing with their mouth as an inclusion activity to give them insight that we all have inner strength when we lose function or ability or we need to adapt because life is all about adapting and those with SMA are the biggest representation of this that we are differently abled but refuse to give up because we can teach each other about what has made our life’s easier as all our journeys are so unique, upon this train of thought I wish to take the opportunity to discuss my recent personal challenge in addressing my optimistic you can no matter what challenge you’ll find a way well this has created a barrier with Occupational therapists as they ask what my functions are and automatically I state I can knit, sow, do my makeup, my nails, feed myself and the list continues but when I need to state my limited body mobility I struggle massively to state this as reality is that I have full function of my neck and mouth, fingers and can move my right toes (this is the same function since I was 10 so its no big deal for me because I’ve adapted and accepted my limited body function) but as Ot they would struggle to note all of this as the medical model states this and that essentially an 18 month old has greater range of motion than myself but I portray capabilities which are often only seen at home as in the community I look friendly but uncapable, whilst at dinner last weekend a lady had a chat with me that she valued my strength that I was inspirational (I was feeding myself) and rather than be offended I took the dreaded perceived amazing human in  a chair as inspirational because maybe I am in the aspect I’ve refused to be unable, chosen resilience, optimism and being differently abled as the norm for me.

     Writing with my mouth

  Side by side (hand left, mouth right)