living beyond @livingbeyondwithguts - Tumblr Blog

When my doctor doesn't take me seriously

Flare hair (noun): the I-don't-care-and-haven't-showered-and-have-only-watched-movies-in-bed look spoonies know all too well

When my symptoms get really bad and it feels like the world is ending

When I tell someone I'm really sick and that person starts a monologue about how he was sick once

When a doctor I thought was nice gets mean really fast

Trying to make a break for it during a hospital stay

My unofficial job title

Prednisone Problem #29495757279

When my friends are jealous of my chronic illness because they think it means I can just lay in bed and watch movies all day

When I can't sleep on steroids

It feels like -

When my doctor is super old and asks me pop culture questions

When I don't understand certain medical lingo

When I go into my doctor's appointment

My face when my doctor says something stupid and then leaves

The collective spoonie response to 'How are you?'

Dear doctors -

When a new treatment is approved for my condition

living beyond