Jan 5, 2020
Harley is a mean mean kicking machine! #erbspalsy #erbspalsywarrior #brachialplexuspalsy #brachialplexusinjury #goldfishswimschool https://www.instagram.com/p/B68zywknazn/?igshid=xtyw8mpj2tnk
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Harley is a mean mean kicking machine! #erbspalsy #erbspalsywarrior #brachialplexuspalsy #brachialplexusinjury #goldfishswimschool https://www.instagram.com/p/B68zywknazn/?igshid=xtyw8mpj2tnk
There she goes. There she goes again. #monkeybar #brachialplexusinjury #erbspalsy #erbspalsywarrior #brachialplexuspalsy https://www.instagram.com/p/B6V9gBSHTwO/?igshid=193xtfy1emeo9
So proud of you and everything that you are and everything that you will become. #erbspalsywarrior #brachialplexuspalsy #erbspalsy https://www.instagram.com/p/B5x3RFonC_R/?igshid=1x4pc9vsticd
Harley walking! #brachialplexuspalsy #erbspalsy #brachialplexusinjury #erbspalsywarrior https://www.instagram.com/p/B5OIQmVnEX0/?igshid=1vmnma3yiyxbu
One year ago my little Harley was able to bend her elbow for the very first time but only in the supine position. She wouldn’t show signs of being able to do this against gravity until months later. Now this is her a few months ago making slow progress but giving us much hope and joy. She’s come a long long long way from being paralyzed at birth. Way to go my little warrior. #erbspalsywarrior #erbspalsy #brachialplexusinjury https://www.instagram.com/p/B3Mf3bznx6l/?igshid=42nnwajw6ysp
Harley at the park #eisenhowerpark #erbspalsywarrior #erbspalsy #brachialplexuspalsy #toddleratplay https://www.instagram.com/p/B2sddUxHiCg/?igshid=1wgyjdxp9ox4o
A little update on miss Harley Quynh: Sonogram shows shoulder looks fairly good. Bicep isn’t growing at same rate as the rest of her muscles hence you may notice her right arm is bent and she has difficulties doing adduction movements to her centerline. If it gets any worse we may be looking at surgery involving soft tissue release at the elbow joint. She will now alternate between the external rotation splint and elbow splint at nap and night time with the latter helping to straighten out her arm. Increasing the frequency of stretching at home. All in all not the best of news but not the worst of news. While we are still in the thick of this, we’ve been on this journey long enough to manage our expectation and look at results from varying lenses, each from a perspective that will help us how best to love and help Harley. But nothing changes how much she lights up our world. Now can someone figure out how I can glue my lips to this face? #erbspalsy #brachialplexusinjury #brachialplexuspalsy #erbspalsywarrior #hospitalofspecialsurgery #hss #shrinershospital https://www.instagram.com/p/B0nuMjnHzbg/?igshid=nt5j5b2cb4k0
Omg y u so cute?!? Waiting to see Dr. Z #brachialplexusinjury #brachialplexuspalsy #erbspalsy #erbspalsywarrior https://www.instagram.com/p/B0jx0gan7oO/?igshid=1t4qruhigv836