I can’t be alone in this- Right?
Is anyone afraid some random doctor is gonna take away your diagnosis that you’ve had for years and just call you crazy?
It’s happened to me once.
He told me I was just emotional and tried to say I have something like phantom limb syndrome even though I have all of mine. Then proceeded to wipe my medical history of the diagnosis and put “emotional” in my notes.
It didn’t help that I cried when I tried to fight him on his new diagnosis.
It doesn’t help to know that doctor was googling what CRPS was in the room with me- It doesn’t help to know he wasn’t trained to deal with nerve conditions
I ended up switching hospitals and teams over it. I changed from a pain clinic to someone who specifically works with CRPS and they put my diagnosis back on my chart.
I’m going in for a nuclear bone scan Monday and I am now having panic attacks that the results (no matter what they may be) will make my doctor change his mind about my CRPS. -When in fact he ordered one to check and see if my CRPS has damaged my bones over the years.
The trauma these doctors have left me with is so severe and I hate it.
I’ve been diagnosed with PTSD over this- I wanted to add this in so you know I’m not using it to be dramatic. I understand the seriousness of the words.
