Oct 30, 2019
My fellow cripples,
You know that feeling where someone touches your leg and you just...
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My fellow cripples,
You know that feeling where someone touches your leg and you just...
Spent from 4:30pm to 7pm at the hospital because of severe spasms and severe pain. They had no clue what to do so they took me off Robaxin and switched me back to Baclofen. I hate that i become immune to meds after using them for a little while. I have to rotate what meds im on constantly. I wish we knew wtf was wrong with me. Im tired of drs shrugging and saying "well you're just a mystery". I dont want to be a mystery. I want pain management and a damn diagnosis.
No one considers the disabled
So my grandparents are here from out of state and are spending the week with us. Tomorrow is my mothers birthday and we were supposed to be going out for it. Well my grandma brings up "hey maybe we can find a handicap accessible hike" which is fine and good but my chair is awful and my pots will NOT be happy and i wont be able to push myself across dirt and rocks. A hike will cause so much pain. Im so frustrated that no one is considering how painful and how much thisnis going to be on my body. Driving in the car would be hard enough. But theyre expecting so much more...
Flare day. Fingers tingling, body cant handle clothes, heads foggy, everything hurts. Ugh.
Crashed hard. Cant lift my head. So much ow. Ughhh
New / fun thing that happens to me...
I get this super AWFUL skin pain in my legs and back and lower arms at night. To the point where NOTHING can touch me or i actually almost scream. Lots of groaning in pain happens all night long. I have no clue what this is. Its worse than any fibro flare ive ever had. Im going to bring it up to my nuero next friday and see what she says.
I feel like i was run over by a tank then steam rolled
-a mood by connor
Today starts my week of drs appointments. Endocrinologist today, dermatology tomorrow, cardiologist on my birthday and nuerology on friday. I am ready to tackle this week.