Living with Worry and Anxiety
In a changed global world that is getting harder for me to navigate, since my twin passed, I live with worry and continue to live with anxiety. Losing my twin is still early days, I need to be able to regulate my emotions better. My disability is also concerning, because I have no way of knowing how I'm going to age with it.
Eagle Syndrome
My twin was my safety net and now I have and deal with Eagle Syndrome, every day is a fight to stay well. I want to get into my life, and it's already been on hold because of the pandemic.
I have no idea about my physical disability as I age and the doctors don't know either. All I was told when I found out about cerebral palsy in my forties, was that as I age, brain cells would die and I would start to see physical changes. That uncertainty is a concern, a worry.
The thought of going through the ageing process without my twin is scary
Going through the ageing process without my twin is concerning. I don't know how that looks. I feel better for writing, for getting my thoughts out there, but even with my writing, I still have to get on with my life and that's where I can become stuck.
Living with worry and anxiety
I live with worry and anxiety, often feel overwhelmed and lost, not helped by the external decisions that have been made by the UK government. I can go to bed with worry and wake up to another day feeling lost and alone. Now with Eagle Syndrome, I literally have no idea on anything.
The neuralgia pain I have in my face, pain in my ear and my jaw brings yet more worry and anxiety. My twin was good at being able to find resolutions on illness. She'd know exactly what to do.
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