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More on my YouTube...
The Quiet Ones: Poem
Poetry from the archives
Not to be Overlooked
There is not a specific note of the abusive behaviour of a particular CPN on my social media, such as it is. There should be. Her name is Veronica Havilland. She was recently assigned with the task of again taunting with a phone call to my husband and carer. This was inappropriate. Her final visit to my home, accompanied by an incompetent support worker called Katie (who the appointment was actually originally with), took place subsequent to an official complaint being lodged about Veronica, as there had been many issues. She is not fit to be around vulnerable people.
On the final visit, shortly after my father had died at 66, Veronica not only drove me to self-harm, but once I had cleaned up my wound and returned, Veronica continued to taunt in the same vein, and suggested that I self-harm by a more serious method, creating more severe injuries, in order to be taken seriously. I requested that she should leave. Her crimes, and those of also not taking suicidal ideation or attempts on my part seriously, went unpunished, and she was promoted, rather than sacked. She got away with it. My statements and those of my husband and carer were dismissed. The NHS predictably backed one of "their own", and presumably, Katie lied for her. Veronica also failed to inform me that I had been discharged. I found out in passing from a receptionist, who assumed that I had already been told by Veronica, as had been part of her job that day.
Dear followers, could you help me out, please? A friend has set up a fundraiser for me to be able to buy a wheelchair that will suit my body's needs. Having hEDS and POTS (among other things) means that I cannot stand nor walk for long, even with braces and crutches. My current blue Enigma Spirit wheelchair is prettier but not much more suitable than those horrible hospital-tanks you find scattered across the Commonwealth. It is too heavy for me to self-propel over pavement, too wide (I can't get into my kitchen) and the seat has no bucket (angle) to it, causing painful muscle spasms if I need to be in it for more than a couple of hours. Not even that long, sometimes. I recently had a wheelchair assessment with the NHS. Their criteria prioritise 'time needed' over 'condition needed for', so they were only willing to provide a cheap, basic chair, no better than the inexpensive Enigma I use now. It would only have caused me pain, fatigue and injury so I refused, accepting the alternative: a voucher, equal in value to the chair I was offered. A decent active-user wheelchair costs in excess of £2,000 (approx. $2,800). It's no good buying a second-hand one because I need it tailored carefully to my size and shape. I've done my research, tried out a couple of makes that were top of my list and decided on the Ottobock Ventus as the base price is close to £1,000 cheaper than the other, which means I could get a better cushion and wheels. As for the voucher offered by the NHS? £200. That's all. Impossible to even buy the Enigma Spirit again with that. So, if you've read this far, chances are you'll be kind enough to follow the link and do something with it. It doesn't matter if you're not in the UK, you can take action. It would really mean a lot to me, thankyou ~♡ https://www.gofundme.com/wheely-helpful-chair
Nightmare continues...
Ongoing issue
My journey
Important playlist.
Bleed Record
AM: More bullying by Vivid.
Eve: Bleeding again.