#sjogrens

[softgritspoonie]

[sleeping-reverie]

Being moderate-high support needs online is so rough at times. Not only are the voices of low support needs individuals amplified more, but you will at times be genuinely fighting for your life against said low support needs people for having the audacity to exist next to them. I'm sorry my existence makes you feel less valid or whatever but that's a you issue, not a me one. And no I am not somehow more lucky than you for being completely unable to work, I've been told so many times that really I only don't work because I "don't have to" and that somehow if I did (which I do, I DO need to work, but they always assume I don't) I'd be made to suffer through it like them which is NOT true, and also zero work means zero money which means zero independence. I get that there are unique and challenging struggles you have to face being in the work place and that you are genuinely struggling under the weight of it all but for the love of god stop trying to compete with me and just listen for once. We're much stronger together than alone.

There's also the idea that people with moderate-high support needs are believed more or treated better and that is not true at all. I get that you're told this lie by society at large to justify their ableism towards you but you will never be disabled enough for them. You will never be severe enough for them. Their standards are impossible to reach for ALL of us. Don't take your rage at the system out on us because we are not treated better than you and all you're doing is fracturing the community more.

So glad I haven't had that experience on tumblr yet, tiktok was genuinely insufferable to log onto day in and day out, the lateral ableism on there is BAD

[cinnabadgr]

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[covid-safer-hotties]

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[mayapapaya33]

So what I'm gathering from Laudna basically having EDS and Occtis having Sjogren's is that I'm actually a Hollow One.

[emberuzumaki]

My body’s favorite hobby? Gaslighting me into thinking I’m fine until I move. Then it’s like, ‘Haha, just kidding- suffer’

[chronicillnessresourcelibrary]

Chronic Illness News from the Past Week

📰 A miniature injectable device is being developed that will help treat chronic pain and movement disorders. Revolutionizing implant technology, this new device is the size of a seed and powered wirelessly, thus eliminating the need for batteries, wires, and surgery!

📰 A new study found that people with celiac disease showed consistent differences in immune cell function. There even appear to be differences in immune system functions before symptoms develop. The researchers hope these findings will lead to more personalised monitoring and better care in the future.

📰 Researchers from Radboud University Medical Center have developed a new test that is better able to diagnose rare genetic disorders, provides a much more complete picture of DNA, and can replace fifteen other tests!

📰 Scientists may have figured out a way to regrow worn-out joint cartilage! This could be a game-changer for people with cartilage damage from aging or arthritis, and could even eliminate the need for knee and hip replacement surgeries in the future.

📰 Researchers at Kyushu University have discovered that the circadian clock may be linked to inflammatory responses in immune cells. These findings could improve treatmeants for inflammatory diseases and cancer as they indicate that giving anti-inflammatory drugs at a particular time of day could enhance treatment efficacy and minimize side effects.

📰 Good news for people with Sjögren's disease – a recent study has advanced understanding of how the disease progresses! This new development could help researchers develop more targeted treatments in the future instead of relying on broad immunosuppressive drugs that work on the entire immune system.