APS-Sticky Blood

This is a place for all of us going through this journey. I myself was diagnosed shortly after my 22nd birthday. How has life changed for you?

[imadeanewblog]

Let me just say that IBS counts as a chronic illness? There’s people out there making IBSers feel like they don’t belong? Reblog if you think IBS is a valid chronic illness please!

[danathepaina]

[styna]

You shouldn’t let your illness define you…

Every healthy person who has felt inconvenienced by our illnesses. (via stynalane)

[effyewceekay]

One of the hardest things to accept about being chronically ill is that I can’t just do what I want like other people my age. I have to worry about my health first and foremost.

[oppressed-opossum]

Do any of you guys have a life threatening auto immune disease like I do? I’m just curious to know you guys better. I’ve come to terms with what I have because it’s manageable and I’ve been diagnosed/receiving treatment for like 6 years. I have a rare disease that is essentially the opposite of hemophilia. My blood clots too much. I’m on blood thinners and have to go to the hospital once a month to get monitored. I had a blood clot in my lung when I was 17, which is how we found out there’s something wrong with my blood. I was so lucky because it stayed lodged in my lung for months, and didn’t move to my heart or brain. So yeah, what’s up with you guys?

[antiphospholipidsyndrome]

I'm an APS baby here as well. I'm still working on learning my new me and pushing what I can and can't do. I want to grt back into soccer but due to the Coumadin my family and doctors advise against it but is the only thing that makes me feel whole again. I had my clot at 21 and my diagnosis 5 months later. At 23 we are still searching for what all other thing are wrong.

[cfsfmmcsandrelatedstudies]

Study on the prevalence of fibromyalgia in antiphospholipid syndrome patients.

(Atiphospholipid syndrome is an autoimmune disease that causes increased clotting and can lead to seizures or stroke-like episodes. It was also seen in some chronic fatigue syndrome patients.)

[principessasiciliana-deactivate]

Is there anyone on tumblr

fighting APS? Looking for support….only 1% of Americans and Brits have this disease….one of you have got to be on tumblr, right? :/

[antiphospholipidsyndrome]

I was diagnosed after my 22nd birthday with APS and am now just looking for an outlet. For others that will understand. Feel free to share your stories. Make us strong.