Medical State Below
It's a lot of bullshit
Update (April 27 2023)
Remember all those weird health issues? Yeah.
So! I donāt have a brain tumor according to multiple MRI scans, but Iām currently being treated for Trigeminal Neuralgia as well as having multiple more scans ordered to check the vessels in my brain.
Running theory now, after an absurd number of doctors, Is that I have a cranial sinus thrombosis, meaning a blood clot in my brain. It isnāt serious since itās chronic based on the (almost year long) rate of development and symptoms.
Iām doing well, life isnāt spicy until you can say youāve had a baby stroke at 24 years old.
Update (February 28 2023)
I donāt have a tumor!!
I donāt have a blood clot! I just have a critically low amount of blood going to my posterior brain
Trigeminal neuralgia feels like a chronic toothache to your left canine tooth except you also recently got slapped by a plank of wood covered in jellyfish
Life is suffering
Update (March 5- 22)
I ended up going to the hospital ED and was stuck there
Yep
I posted one of my fancy problems on Reddit and GOT TO THE FRONT FUCKING PAGE (YES)
Got invited into this subreddit?? For top posters of all of Reddit?? And part of an exclusive gold club???
Reddit fucking DIAGNOSED ME ACCURATELY.
I have Trigeminal neuralgia, itās the nonsense best fit diagnosis my doctors and I have settled on since original symptoms happened in 2020
Current Diagnosis : Atypical Trigeminal Neuralgia, AND Trigeminal Autonomic Cephalalgia Unspecified (TACs)
Here is more info on TACs for those curious
The trigeminal autonomic cephalalgias (TACs) are a group of primary headache disorders that are characterized by strictly unilateral trigemi
Update: October 26, 2024
Surprised, I live.
For update on the ridiculous situation, I'm fine. On a lot of medications but it's cool.
In terms of neurology reports- below is my current medical documentation regarding all the nonsense, it's up to date. (some condensing)
She has been evaluated by multiple physicians including ear nose and throat (ENT), Ophthalmology,Neurosurgery and Dentistry. She reports a history of tinnitus dating back to childhood, as well as very limited sense of smell. She reports that in the fall of 2020 she noticed significant hyperacoustics in her left ear which was accompanied by a sudden onset of vertigo. She was seen by audiologist, and was found to have impaired vestibular reflex on the left. She was then referred to ENT who did not have a reason to explain this, and she then underwent internal auditory canal MRI. She does not have any issues on the right side and does not have any issues in her arms or legs. She continued to have further evaluation with MRI and MRA of her head which did not show any significant concerns for her symptoms or any vascular etiology. She more recently had an episode where she had a dilated pupil on the left side and presented to the hospital. She had vascular imaging of her head which showed no significant concern, and she was evaluated by Neurosurgery without any recommendations for any changes at that time. She has followed with Ophthalmology. Other than some photophobia at that time she was not having any significant symptoms. In addition to persistent, dull sensory symptoms in the left side of her face, she states she will have āflaresā in which pain will significantly worsen and either radiate upwards towards her forehead or down towards her jaw bone. She states sensory changes and pain begin a the left tragus and never crosses the midline of her face. When she experiences these flares she will occasionally also experiencing photophobia. To manage the flares she will find a dark room and sit quietly. She states they generally do not last longer than 10 mins. She states that if she does not find a dark room, the flares progress into a trigeminal autonomic cephalalgia occurrence and last multiple days with increased pain.
I hope this is helpful to anyone who had been having pain with Trigeminal Neuralgia, Cluster headaches, or other cranial pain. The outcome is that this is unknown onset, and unknown when it will resolve. I type this currently with the odd sensation in my face as if I attempted to bite down incredibly hard on a ice cube, with my jaw throbbing and ear ringing a cool 750hz only on the left (here you go you curious animals)
Thanks for all your concern, live life to the fullest my friend
I have other ridiculous medical issues too. An autoimmune disease, some bone problems, I have a tendency to dislocate my left hip and left shoulder, oh and I went to the ER recently to find out I need to surgically remove my gallbladder, right after I had a consult with a sleep doctor who suspects I have narcolepsy, no joke. I have been cursed by fate because otherwise I would be too strong, clearly.
Be safe out there.
Update- March (?) 2025
Turns out my gallbladder got clogged. Ended up having to be raced to the ER at 4AM (after the pain starting at 2AM) and needing to get surgery.
Iāve got 4 nasty scars, a ton of GI and nutrient imbalances now. My inability to absorb Vitamin K has turned me into a pseudo- hemophiliac. My dude, they took my organ.
Oh, and now I have sleep apnea because my brain isnāt sending the signal to breathe (not obstructive- itās central sleep apnea) which explains all of the exhaustion issues. They thought I may have legitimately had narcolepsy.
Update- June 24, 2025
So, my eyes have been bothering me for a few months- not in terms of the pupil issue, but justā¦scratchy.
I always felt like there was dirt or a tiny bit of sand I couldnāt blink out. When I wore contacts (which I love) I couldnāt do so that long (maybe 4-5 hours?) and when I removed them I would always have huge amounts of āeye gooā develop.
Ages ago I learned that Iām allergic to the protein film that builds up on contacts. I developed Giant Papillary Conjunctivitis (GPC) . I had to switch contacts to those that allowed more oxygen (because my retina was also āstarving for airā) and different more aggressive chemical solution for my lenses. I went to the doctor thinking this was happening again- but no.
My friends. My cornea was covered in so many tiny scratches. Like if you buffed glasses gently with sandpaper. Iām baffled but he just says āoh, with Trigeminal neuralgia if affects your lacrimal tear productionā.
I did not know that, but here we are. Iām trying new contacts and Iām now juicing my eye with drops constantly.
Lots of issues, but I am petty enough to force my body to keep working. God canāt stop me <3
Update- August 15, 2025
So, I have a CPAP.
I've been exhausted as hell- actively falling asleep for hours on end then still being tired. Turns out, I stop breathing in my sleep, hah. I should of, hah, guessed this may be a thing. Did I mention my aunt passed away from spontaneous respiratory arrest in her sleep?
I have type-2 (central) sleep apnea, meaning it isn't the obstructive one most people have (throat relaxes and muscles slump and impair your breathing), but instead I have this fun thing.
My brain sometimes forgets to send the signal to breathe. My O2 levels have dropped to 83% during my sleep, because I forget to breathe for very long amounts of time. Not only that! But according to my readings, I forget to breathe when I am in REM sleep primarily, so I have REM-predominant CSA. I wondered why I had such bad nightmares- turns out my body is literally suffocating a bit.
SO! What does this mean! I asked my sleep doctor and hahaha- she also believes I have type 2 narcolepsy (which is the one without cataplexy, aka the fainting goat looking collapsing). And ironically, I already am on the meds for that due to my other nerve issues. So the treatment...is to take naps- but not so long as they go into REM sleep because then I stop breathing.
My dudes. My sleep doctor prescribed me to take 40 minute naps.










