The Random Journey of a Kinky Haired Gyrl

When life gives you lemon you make lemonade, selling it for a profit and tell life to go kick rocks!!!!!!!!!!!!!! ************************************ Email: [email protected]

[glompcat]

This question and its answer from The New York Times work advice column is W I L D.

[ebonesherell]

It’s been while since I written in my blog. Being in grad school full-time, working full-time and being a mom has taken up so much time. Im hoping that I will be able to come back here and write more often. Well the first update is I am no longer on Remicade. Back in April 2019 my insurance company sent me letter stating that they will no longer pay for my medication and that I needed to switch to the generic brand. So now I get Inflectra. After the first infusion I was in so much pain. My whole body hurt. Apparently that happens. I have gotten use to the pain but now I know not to plan anything on those infusion days. In the beginning Dr. Hamvazi wanted me to take Methotrexate, which is an anti rejection drug but I refused because I was still breastfeeding at the time. Now I don’t have a choice. I am currently flaring under my left arm where I had the C02 laser surgery in 2015. I had no activity there until recently. Today Dr. Hamvazi said that suspects that I have built up a resistance to the medication and that I need to take the Methotrexate. I literally just stop breastfeeding last week so I now I guess I will start on this medication. I know I had some issues with Remicade, like Wells Syndrome but at least it was working. Now I’m on this painful, generic medication that’s basically not working like it should. Now I have to take a 7 day course of Prednisone, use Metrogel on the big hole under my arm, and take the anti rejection medication once a week. I guess was made me sad was I thought getting the C02 surgery was my cure. I thought that eventually I would be able to get off of all medication once I had the rest of my surgeries done but I guess that’s not the case. I really don’t want to take medication for the rest of my life. I also feel like I am stifling my husband’s career. He has really good health insurance through his job and he won’t leave because of the care I need. I guess Im feeling overwhelmed right now. I am looking for a new job because I want to work in the health field but with all of this going on I think I may have to slow down my search a bit until I get my health back on track. On a lighter note I did finish school. Now I have my MPH (Master in Public Health) now Im trying to figure out what I can do with it.

[ebonesherell]

[ebonesherell]

The Mommy Choice

When you sacrifice for the good of your baby. He caught a cold last week so I pushed back my Remicade infusion so that he could fight the virus. Now I’m sick. I cant take anything because I am breastfeeding. My HS is flaring and now I have to push back my infusion another week. I love breastfeeding my baby but sometimes it sucks. I feel bad for feeling that way but it does. Hopefully I will get…

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[ebonesherell]

When you sacrifice for the good of your baby. He caught a cold last week so I pushed back my Remicade infusion so that he could fight the virus. Now I’m sick. I cant take anything because I am breastfeeding. My HS is flaring and now I have to push back my infusion another week. I love breastfeeding my baby but sometimes it sucks. I feel bad for feeling that way but it does. Hopefully I will get over this soon because I need my infusion and Ziggy needs his mommy at 100%. 👶🏾 https://www.instagram.com/p/BnJ7DPIlVNfVpAX9yqosAGtrWEE4oidxIBrm0g0/?utm_source=ig_tumblr_share&igshid=4tdyakbo2exg

[ebonesherell]

Remicade Sunday

I am glad that Sunday I will get my Remicade infusion. The heat has not been the greatest for my HS but I rather be warm than cold. Ziggy’s 4 month check up is on Monday and I won’t be there. I know his dad can handle the visit but I just want to ensure that he receives absolutely no vaccinations at this visit. He is due for his next dose of Hep B, DTap (whooping cough) and some others but he…

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[ebonesherell]

My morning pump session. 💪🏾

[ebonesherell]

My morning pump session. 💪🏾

[ebonesherell]

My morning pump session. 💪🏾

[ebonesherell]

<p>Labor and Delivery Pt. 2</p><p>On March 3rd I went to bed around 11 o clock I had a bowl of chicken chili. I fell asleep watching a documentary about David Keresh. I woke up around 1:25am because I felt a little wet. I was so mad because I thought I had peed on myself a little. I was walking towards the bathroom when I felt a gush of water. I turned the light on and just looked at water pouring out. I tapped RaJon on the shoulder to wake up. Tapping turned into hitting. It was my fault. I told him that he could take a Benadryl to help him sleep hours before. I finally woke him up and he just stared at me “Are you sure it’s not just pee?” I told him I was positive because I would not have this much pee coming out. Mind you while he is asking me this the water is still leaking out at full force. He said “Ok, guess this is it.” He grabbed the hospital bags, the car seat and extra towels for me to sit on. I grabbed my purse and my bookbag. I also replied to my coworker on Instagram telling her that she jinxed me. We drove the 30 minutes to the hospital and my contractions were small and every 15 minutes.  When we got to the hospital my pants were soaked and so was the towel. Once we got to the back they put me on the monitor to see if I was contracting and to test the fluid to make sure that it was amniotic fluid and sure enough it was.  My contractions became a little stronger and I was nauseated. I thew up the chicken chili and it smelled horrible!! After throwing up in a container the doctor checked me. I was only 1 centimeter dialed so I had to go into a traditional labor/delievry room. I get to the room around 3:00 and my contractions had started to get stronger. The nurse had started an IV because I needed antibiotics (I had tested positive for group B strep). The IV went in but it fell out. I was sweating so much that the tape was not adhesive and my IV fell on to the floor. I had 3 nurses come in trying to figure out what tape to use on me. They finally found something that worked. I was miserable because instead of the tradition contractions, break, contraction, I had contraction, contraction, break. During my “break” I was throwing up. I was in so much pain because the baby was sunny side up and I was having back labor. Around 5am RaJon had called my mom and at 6am he called Ms. Mitchell, my Doula. All I could do was stay in the bed. My doctor was on call that night so she came in around 6am to check on me. She had ordered medicine for the nausea but it wasn’t working. I didn’t get up to walk or do anything in my birth plan. All I could do was hold the bars on my bed or RaJon’s hands. My mom came around 7am and was trying to talk to me but I was not hearing a word she said. At 8am I broke down and asked for an epidural. I was so tire from the contractions and throwing up. The nurse had me get up and bounce on a ball for a little while but it was not helping. My Doula came in around that time and told the nurse to get me an epidural. The Anesthesiologist came in and gave me the epidural. It did not take the pain completely away but it lowered it. Around that time I was only 3 centimeters. The nurse had me lay on my side and put a peanut pillow between my legs. My doula started moving my top leg back and forth while talking to my mom. I told RaJon to take a nap and I took one too. I woke up around 10am  with my contractions getting stronger and I felt like I had to go to the bathroom. I tried to get up but the nurse said that I couldn’t walk to the bathroom. She called Dr. Moore to check me and to my surprise I was 9 centimeters and he had turned into the right position. When I asked if they could increase the epidural dose because it was wearing off they told me they couldn’t. For 2 hours I felt every contraction and was breathing/humming through it. I can contribute my control breathing to yoga. Around 12pm I was 10 centimeters and I began pushing.  I was on my side at first and I didn’t like that position then I used the squat bar and squatted on the bed. I stayed in that position for a little while but then my legs started to get tired. Then the nurse had me lay in the bed with my feet on the squat bar. She got a sheet and looped it on the top of the bar. WIth my contractions she had me pull myself up and push. My doula said that I was too quiet. She told me to go deep with in and let out a scream and use the energy to push the baby out. I did what she said and my doctor told me that the head was coming out. I told them that I wanted to see and they placed a mirror. All I saw was hair and I was so excited. With the next push his head was out. Then I felt the ring of fire. I kept yelling “It burns”. My doctor told me he was almost here. I did one last push and my baby was born at 1:16pm on March 4th. I was so excited and tired and nervous at the same time. He was perfect and I was able to get my magic hour with him. (My doula argued with the nurse about it and she gave in). He did the breast crawl, nursed and went to sleep.</p><p>I wanted a natural birth at the natural birthing center and I did not get that.  At first I felt like a failure but I needed medicine to help me cope with the pain but I had to realize that I brought a new tiny human into the world and that was the ultimate goal.

[ebonesherell]

On February 27th I had been having really bad back pain. The pain would come and go and it was intense. I believed I was having back labor but RaJon said that it couldn’t be. He remember that our teacher in the natural birth class. ( I was going around work swaying every couple minutes because of the pain I was in. I even had Jalani pushing my hips together. Me bent over and her squeezing my hips together was not a pretty sight). I went through this for 2 days. On Thursday I thought I was leaking fluid while I was at work. I called my doctor and she wanted me to come in but we were in the middle of a snow storm and I was scared to drive. I called RaJon to come to my job to drive the car (we carpool since our jobs are close to each other). He said that he would get one of his co-workers to drop him off. I asked him if he wanted me to send an Uber to him and he said no. So 2 hours passed and I was still waiting for him. HIs boss was in a meeting and he had to wait for him to get out. By time he got to my job it was too late to go to my doctor so I had to go to the hospital. We were arguing on the way to the hospital because he said that I did not communicate the urgency of me going to see my doctor and I was mad at him because I offered to send an Uber and he said no. My hospital bags were at home because he didn’t want to put them in the car in case we had to rush and take the blue car. I was not happy at all. It took almost an hour to get to the hospital because of the snow storm and traffic. When I got to the hospital the midwife checked me and guess what?! My water was still intact. I was only dilated 0,5 centimeters. The wet feeling I had was extra vaginal secretions. (At least it wasn’t pee). I felt relief and I was hungry. RaJon got me a slice of pizza while they were monitoring the baby. I found out then that Chick Pea was turned sunny side up. His head was down but he faced up instead of facing down. The midwife suggested that I should get on all fours and sway for a while in order to get him to turn. There were lessons that we learned from this false alarm. 1. I needed to stop driving and let RaJon have the car during the day. 2. Put the hospital bags in the car everyday in the morning and take them out at night. 3. Try not to be angry at each other because that when the breakdown of communication happens.

That’s all for now……part 2 is coming soon.

[ebonesherell]

My Chick Pea is here. Birth Story coming soon.

[ebonesherell]

On my way to see Black Panther! #37weekspregnant

[ebonesherell]

I have the best Yoga teacher in the world!!!! Thanks Amy! (at LA Fitness - LIVONIA)

[ebonesherell]

My husband borrowed this Jay-Z line from the song “I Just Wanna Love U” and wrote it on the shared calendar to remind both of us about My Remicade infusion. I received it Sunday and it will be my last until Chick Pea comes. Dr. Hamvazi wants me to wait 10 weeks before my next infusion so that I can fight off any infections that may come with child birth. My due date is March 9th and I’m hoping…

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[ebonesherell]

I am 35 weeks pregnant now with only a couple weeks to go. I am nervous, unprepared, excited, and scared at the same time. On Tuesday (Jan. 30) night I woke up with horrible back pain and my usual pelvic pain. I went to the bathroom to pee and when I wiped I saw blood. I was freaking out a little and wen I told RaJon he told me to get dressed to go to the hospital. I paused and then thought about it. I went to wipe again. I was still bleeding but I wasn't sure where is was coming from. RaJon told me that he wanted to look so I let him. He told me that I was bleeding from a stupid HS spot near the opening on my vagina. I was relieved because I thought something may had been wrong with the baby, I was also annoyed because my nerves was on 10 and it was just HS being stupid. I saw Dr. Hamvazi on Thursday and he wants me to get my last Remicade infusion before the baby comes. So I will get my last infusion tomorrow. After that I will have to wait 10 weeks for the next infusion. 

Random----I had another ultrasound done at 32 weeks because I was measuring big. They thought that they may have my due date. They didn't. Chick Pea is just a big baby.

[ebonesherell]

Counting Down

Since the day after Christmas I have been sick with a sinus infection. I figured I caught a cold from some little kid that spread through out my household. RaJon was able to get over it within 5 days. Me on the other hand is still battling it. It went from a cold to a sinus infection and now I am on Antibiotics. Suppressed immune system is one of the things I sacrifice to keep my HS under control. I was suppose to have my next infusion on the 28th but I might push it back just to make sure that I am completely over this infection. Right now I am flaring but it's tolerable . I've been using Vicks and Apocreme to help it open and drain. Im hoping that it will open within the next 2 days. It's in my pubic area and the challenge is the lack of visibility for me. I have not seen my groin area since  the end of September. Ive been relying on my sense of touch to ensure that I am putting the medicine in the right place. I only have 8 more weeks before Chick Pea arrives (Both exciting and scary at the same time). On a happier note,  last Sunday I had my maternity shoot and it was amazing. It was cold (thank you Michigan) and I loved every minute of it.