Update 11/24/2019 - Major Health Concerns
Hey all, we’ve got some icky news.
On November 18th I had my second colonoscopy. It turned out they only took one large polyp (that seemed sorta dangerous) because they felt it was pointless to remove the 100’s of smaller ones. They said they wouldn’t be able to keep up with the growth of them and they can only keep me under for so long.
Due to all of this, I’ll have to have ALL of my colon removed VERY soon. My doctor sent a referral to the Cleveland Clinic for a surgeon as they do a LOT of colon removal surgeries and our area doesn’t really have anyone my two doctors would suggest to go to. The other problem we run into is that I’ll have to be in the hospital for 2-4 days and will have 2-3 surgeries over the course of a couple months, so I’m not sure how much work I’ll be able to get done on the game during those time periods. My first appointment will be on November 29th and I’m assuming we’ll be figuring out what type of surgery and when I’ll be having it.
Truthfully, I don’t know what my quality of life will be like afterwards, especially when you pair it with the aftermath I deal with from the thyroid cancer. I do not plan to let this affect things too much, but it probably will at the beginning of treatments and getting used to my new life.
On top of the colon situation, my current thyroid medication isn’t working as well as it used to since the manufacturer has changed suppliers. This is the second time this has happened with my medication. My primary care doctor recommends me going to a Functional doctor as she thinks I need to get a compound thyroid medication specially made for what my body needs and also to finally have a doctor that will look into all of the health issues I have. Problem is that my Medicaid won’t cover Functional doctors and the first appointment would be $936 (and unsure how much subsequent visits will be) which doesn’t cover lab work.
As I’m unable to work and Justin can’t because of his own medical issues along with acting as my caretaker 24/7, we have no income. A low rough estimate comes to $4,000 for the trips up to Cleveland, hotel stays, and doctor appointments between both the colon issues and the Functional doctor. The goal is to diagnose what’s causing the muscle weakness, muscle and bone pain, memory issues, worsening depression, anxiety, and fatigue along with many of the other problems that I’ve been dealing with for seven years. During this time I’ll also be applying for disability, getting treatment, and hoping that I can eventually work again at a real paying job.
I’ve been so proud of all of us for working through whatever has been put in front of us, but lack of funds are truly a roadblock in this situation. I am beyond upset that I need to setup a gofundme for this, but there’s really nothing else I can do. I do not expect any of our fans to donate, but I would very much appreciate it if people could share my gofundme link. I feel like the faster I can get all of this over with, the faster I can put all my focus back on game dev work.
Along with my own personal health issues, Darkenmarr is out of commission for a while. In September her right thumb swelled up out of nowhere. For awhile she was able to still work on Alison’s sprite, but it’s gotten to the point she can’t hold anything in her drawing hand. She had gone to urgent care for help and they claimed it was arthritis, but after talking it over with her, Justin, Darkenmarr, and myself disagree with the diagnosis (we believe it to be fractured somewhere). She’s trying to get the VA to approve her doctors to look at her thumb and it has been taking awhile to get a chance to even talk to people at the VA. There’s also some very personal family stuff going on at the same time that understandably needs more of her attention.
The plan is to contact her on December 12th to see what’s going on and the plan of action at that time. In the meantime, I think Justin and I will focus on helping the other team members with their work and dealing with our health issues while we wait for Darkenmarr’s return.
Since I last posted, though, we did manage to get a couple of backgrounds done and Justin’s been finishing up the look of some of the GUI elements. So some progress has been made at least. Hopefully, we’ll have more to update on in the next post.