I know every time Tumblr posts come up about injured athletes you jump on the support ship and reblog it, but please don’t skip over this post. Meet Jess Ambroe, my exclassmate, not by her choice, but by an evil disease’s choice.Lafora Disease, also called Lafora Progressive Myoclonus Epilepsy, is a rare progressive and degenerative form of epilepsy that strikes children usually between the ages of nine and fourteen. Symptoms become increasingly worse within a short period of time, and include grand mal and absence seizures, myoclonic jerks, cognitive decline, difficulty walking (ataxia), severe hallucinations and dementia, eventually leading to death within ten years of onset. It currently has no cure. Jess has been battling this year for five years, she is now eighteen. She cannot talk for herself, eat for herself, or do anything for herself. She does not go to school and is right now at diminished to the brain levels of a five year old. The only good part is Jess still remembers us, her school, her family. She was an honors student, a volleyball player, a popular girl, a friend.In honor of Jess my school’s hockey team will be having a game TOMOMORROW Night for her. It will be the second year straight we quit using our names, the yellow jackets, and use simply, Jess’s ARMY. We have already made 5,000 dollars in donations from various sources including the Pittsburgh Penguins. I know you can’t come, but if you could just reblog this, it will show Jess, that you care.
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theartofmadeline
