IndoUSrare

A non-profit organization focused on accelerating diagnostics and therapies for rare diseases

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On a Mission to Find Treatment for Autism

I want to help others. But first, I need your help! My name is Ishaan Holloway. I’m a 16…

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Art4Rare 2023 - Worldwide Art Contest

Indousrare announces #ART4RARE2023, an annual rare art contest for all age groups, inviting artists from all over the world to showcase their skills in order to raise awareness about rare diseases and compete for amazing cash prizes.

Theme: All Things Rare (e.g. Rare plants, Animals, Events, Abstract).

Art submission can use any type of medium (watercolor, acrylic, oil, mixed medium etc.)/Murals/3D Art.

The entry deadline is February 10, 2023, at 11:59 p.m. (PST) / 1:29 p.m. (IST).

Winners of this contest will be announced on International Rare Disease Day, February 28, 2023.

In case there are questions related to the event, please feel free to reach out at: [email protected]

To Register, click - https://bit.ly/art4rare2023

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Science4Rare 2023 - Worldwide Science Contest

Indousrare announces #SCIENCE4RARE2023, an annual Worldwide Science contest.

Calling on all curious minds of all age groups to show off their talents to raise awareness about Rare Diseases, and a chance to win great prizes.

Last Day to Submit: 10th Feb 2023, at 11:59 p.m. (PST) / 1:29 p.m. (IST).

Results will be announced on International Rare Disease Day, 28th Feb 2023.

In case there are questions related to the event, please feel free to reach out at: [email protected]

Contest Details, click - https://bit.ly/Science4Rare2023

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Rare Disease Organization Connecting India and US – IndoUSrare

IndoUSrare is focussed on accelerating access to orphan therapies by building collaborations between the USA and the Indian subcontinent for research, education and advocacy.

IndoUSrare vision is to educate, empower and advocate for diverse patients with rare diseases in the US, India, and globally by building collaborative bridges between the western and eastern geographic silos for stakeholders of rare diseases to maximize diversity, equity, and inclusion in research and development for accelerating the development of diagnostics and therapies.

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IndoUSrare has partnered with RARE - X to understand India’s rare disease landscape and has conducted a feasibility study in India to determine the barriers towards enabling patient-owned health data registries for national and international data sharing. We are pleased to share the results of this study and invite the global rare disease community to utilize the key insights from this report.The India Feasibility Study Report: Patient-Owned Health Data Registries is available at here.