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I have asked my mother for some form of mobility aid, whether a cane or wheelchair, i suffer from fibro but she says because fibro is only bad if ur anxious, i just need to calm down abd i dont actually need help. I get really tired and have breakdowns often as i get fatigued easily. Any tips/ advice?

Hey hun,Is there any way for you to get access to a can yourself? Although it’s not ideal there are some cheaper ones online that I’ve made use of before. Maybe that would help?Does anyone with fibro, or who has dealt with a similar issue, have any advice?Stay strong,Bella

Where have we been?

So, I figured maybe time to explain my absence huh?

I can’t speak for the other admins - I think they stopped posting on here a little while before I did. But I can explain why I’ve been missing, and I hope everyone can understand!

About 18 months ago I finished secondary school/high school, and I was pretty exhausted. I’d put a lot of work into the IB and spent a lot of the time sick, but I managed to get into a really good uni here in the UK. I thought it was what I wanted, but I made a mistake. I didn’t realise that maybe both my body and mind needed a break, too.

I got to university and things began to spiral. I won’t go into too much detail but, I kind of hit rock bottom, and it became apparent that my life was at risk. A nurse came to visit me after a particularly bad couple nights and advised that I be sent home.

The next year was a long recovery. After a few months of sickness and battles with my mental health I tried to pick my life back up again. I got a full time job that took into consideration my chronic illness and felt a bit like I had a purpose again. I made friends who supported me. I started applying for unis that I actually wanted to go to.

So here I am now, at a different uni, studying a different course, a lot happier and... maybe healthier? I’m still being poked and prodded and they think there’s something undiagnosed but they’re not sure yet. Most my spoons have simply gone into getting to class, getting to work, and making sure I can brush my teeth without conking out. And sometimes I don’t really succeed and my flatmates wonder where I disappear to for several days... the beauty of a spoonie’s low battery, right?

I apologise if the silence on this blog caused anyone upset or anger - I needed to focus on myself and I hope that was okay. I hope to get back to this blog and continue helping out if anyone has asks, or questions. Feel free to send in submissions also - I’ll get them posted.

Thank you for your patience, those who are still here to read this. It means a lot to me.

Bella x

#spoonie #just spoonie things #chronic illness #tw #mental health

I want to understand the spoon theory,but i have Dyscalculia;a math learning disorder,and i just don't understand alot of stuff because of it, so stuff like that doesn't make sense to me. Is their other ways of looking at it than 'low on spoons'??

Hello,I think spoon theory has become a lot broader to incorporate a lot more people. If this affects your life day to day, of struggling with this can affect your energy levels, then I think you can still be a spoonie. Does this help?Bella x

I’ve realized recently that something I didn’t know wasn’t normal. If I’m standing or walking for 30 minutes+ my lower back and legs start aching. My feet too but it takes longer. It’s been here since I was 6-7. I’m 16 and very active, I’m a gymnast. id chalk it up to that fact but since this was a thing from before my sport I don’t think that’s it. It relieves ache to bend over or sit. The aching doesn’t go away though until I sit or lay down for a few hours. Do you know what this could be?

Hello,Does anyone have any advice? Bella x

So I have a question.. I have severe depression ADHD and anxiety. My anxiety and depression severely cut back on my energy... I love spoon theory and I think it applies to me, but I'm not sure if I should use it bc I don't have chronic pain, my issues are mental.. can you please help me?

Hello hun,I’m sorry you deal with this. Spoon theory incorporates both mental and physical illness - if it causes you problems day to day then you are a spoonie.Lots of love,Bella x

Can mild chronic back pain from scoliosis and anxiety/depression consider someone a spoonie?

Hiya,If you identify with the spoon theory my love then you are a spoonie!Bella x

Hey! This might seem like a strange question but I was wondering if anyone with cfs/fibro/ any type of illness that reduces ability to move, has had their nose or any other facial piercing done before? I’m contemplating getting my nose done but I’m worried I won’t be able to manage the upkeep.

Hiya,I have my septum pierced!! I always go on and on about this particular piercing because it’s so so easy! I’m not a professional piercer or anything but it requires minimal upkeep due to the balance of bacteria in your nose. It’s my favourite piercing because I’ve never had any problems - does anyone else have any good advice/experiences with piercings to share?? Bella x

Do you have any tips for dealing with feeling guilty? I suffer with chronic fatigue and chronic pain and rarely go to school because of it, but I feel so guilty for missing so much. People keep telling me I'm in the most important years which makes it worse for me because I'm not there.

Hello my lovely,Guilt is definitely something we’re all familiar with in this community. But please stop beating yourself up for things you can’t help. Just because you can’t have a “normal” experience of school doesn’t mean you can’t make YOUR experience special. There are ways to still enjoy life even through we struggle, and if we have to rest more than most - that’s okay! We’re just as strong and capable as everyone else, we just have our own ways of getting there.Lots of hugs,Bella x

Do you post more recipes for gluten free/ and or vegan stuff? Sorry for bad English.

I can do. I’m a vegan and part-time gluten free so I can past recipes for you - it might take me a while to compile them but if you have an requests let me know.Bella x

Ok so I can't decide if I should bring this up to my parents or not because I feel like it will look like I'm looking for attention but I've been getting really light headed, chest pains, heart palpitations and really fast heart rate for months and for the past month I've started getting super nauseas, bloated, tons of abdominal cramps, and as gross as it is I've been constipated should I bring this up??

Hello!Yes! Bring it up! Don’t suffer in silence my lovely.Bella x

Hey, so I don't know where else to ask this question so hopefully you can help. I'm super introverted and often need alone time to recharge. Sometimes when I know I need to do something around people I think "I just don't have the spoons" then get worried I'm appropriating spoonie language I don't have a right to. It is also possible some of how I feel is from undiagnosed depression but since I don't have a diagnosis I wanted to know if it's wrong of me to use this language or not. Thanks.

Hello,I’m honestly not too sure on this one! If this is affecting your day to day life then it might be something to look into, and if you’ve read the spoon theory and identify with it then it could be possible that you are a spoonie too. But as for appropriation, I think spoons refers to energy? But I think specifically the energy people with physical/mental illness spend. Can anyone else help?Bella x

Hiya! I just started this blog to try to document my life trying to manage my money and survive capitalism while living with chronic illness. My hope though is for folks to be able to also submit stuff with thoughts/tips/stuff to the blog about how they handle things in this regard, if they want to. A lot of frugality/money management blogs don't take into account the costs of chronic illness and disability so I wanted something that can speak to this community.

Hey!Check this lovely blog out guys! Bella x

Hey so my medical problems have recently become mysterious enough and bad enough to place me into a situation where doctors don't know what to do with me or how to help me... and I've gotten so confused about if I'm actually in as much pain as I've said I am? I'm so confused about my own situation? Am I just complaining a lot? It's such a hard to explain thing? That doctors have never heard of? And having to explain so often, to x specialsits or coworkers or family... I've lost all momentum :(

Hello love,It’s not difficult to get in these kinds of situations, especially without a diagnosis. I think a lot of us have also been there. The most important thing is to continue to look after yourself as best you can. And please please don’t give up. It comes in the end, it will better I promise, and you will eventually get answers. Just please don’t give up.Has anyone got anymore advice for this lovely spoonie? Bella x

Can I ask some quick advice? In my new apartment, my bed is positioned so that two and a half sides of the bed are against the walls. I have some mobility issues and my bed sheets keep coming off. Do you have any tips to get fitted sheets on better, or to help them stay on? And I don't have anyone to help me either.

Hello there,I personally use those sheets with the elastic? So that they stay under the corners of the bed? Those are really easy to use I think.Does anyone else have some advice on this?Bella x

Hi! Recently it was really bothering me that I can't find a lasting relationship bc of my physical/mental chronic illness. Even if I specifically state beforehand that I have these issues and they seem okay with it at first, they eventually end up severely underestimating the impact that chronic illness has on my ability to function. There are so many expectations I can't meet (even though that's all I want to do) but they just see me as lazy. Are there any other spoonie who experience this?

Hiya,I’m so sorry you’ve had to deal with this. First of all I’d like to promise you that not everyone is like this - one of my ex-partners, although we didn’t work out, was very supportive throughout our whole relationship, and our break up was completely unrelated. We are still friends today. Is anyone else able to help with finding the right person?Bella x

you guys were one of my first follows on this website, back before I was diagnosed. thank you for making a community where I felt so safe to express my feelings, pain and symptoms. hopefully one day you'll return, but until then, lots of love and soft hugs. take care! 💐

Hiya my lovely,Thank you so much for this message, it means so much. I’ll be posting something to explain my absence soon but until then, lots of love,Bella x

not new to tumblr, but new to spoonie land. would appreciate any follows - looking for friends in the same boat! any advice on how to get out there?

Hi!!Welcome! I’m sorry if this welcome is so late. I’m happy to make friends and I’m sure plenty of people here would too! I think just be genuine and involved and you’ll be fine!Bella x

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