LupusNinja

Chronic pain and SLE. Observing Life, instead of playing a part Day by day, literally breaks her heart.

[ratsratsratsratsratsrats]

had to do it

[ratsratsratsratsratsrats]

had to do it

[viscerios]

Guild Wars 2 that bubble was lit af

Viscerios. Spellbreaker. marauder armor rest berserker Far shiverpeaks vs. Gandara (Green) Team fight early sunday morning

[kues]

[jekabeth]

Let It Snow (spoonie version)

It’s that time again where I take a song and rewrite it for Spoonies! Hope you don’t have a terrible holiday season (what’s left of it).

illness blows

Oh our symptoms can sound quite frightful And our moods not very delightful In case you didn’t already know…

illness blows, illness blows, illness blows

It doesn’t show signs of stopping And my joints have all started popping My blood pressure’s way down low

illness blows, illness blows, illness blows

Well we don’t get much sleep at night Got another migraine from the storm Compression hose to hold me tight My heating pad to keep me warm

Our patience is slowly dying And our doctors still think we’re lying “You should really try Yoga”, NO!

illness blows, illness blows, illness blows!

[chronicallyinvisible]

you ever have that feeling where you’re lying down but you wish you could be lying down more

[lupusninja]

Almost there.

[lupusninja]

It’s that part of the year!

[deepsthots]

no one knows!

[spooniestrong]

[lupusninja]

Midas first birthday.golden age

[lupusninja]

These golden boys are mine. They are the only reason I leave the bed.

[gildedspurtle]

Chronic Illness Update:

It hasn’t gone away yet.

[applesauceluke]

Just chronically ill things

Planning your whole day around taking a shower

[spooniestrong]

[ddailyspoonie-blog]

[lupusninja]

A Classic Spoonie Verbal Transaction

Doctor: *shakes your hand* How are you today?

Me: um, I'm okay...

Doctor: Great! I'll see you next time!

Me: um... no, i said i was okay because that is a thing people say to the question; how are you? if you had asked me; has your chronic fatigue improved lately? is there any change in your levels of pain? are you more or less nauseous than normal?