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DEAR READER
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⣠Chile in a Photography ā£
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@mschronic
It's in your genes
At the genetics clinic. I couldn't sleep last night because I was so nervous. I'm afraid of what they will say but excited to have more answers. They will be testing to see if I have Ehlers Danlos syndrome. Wish me luck!
Just one of those days
It's one of those days where all you want to do is crawl into bed with some tea and Netflix.
In case no one told you today: You matter. You are important. You are cared about. You are respected. You are loved. You are essential. I am so very glad you exist. Please never change that!
United States Spoonies
Iām putting together a masterpost of spoonies by state- if you could a) message me your state and your primary condition (assuming that youāre comfortable giving out this information), and b) reblog this post for signal boosting purposes, I would truly appreciate it!
hi! how are you doing? have a nice day! :)
I'm doing well. Thanks for asking! How are you doing?
The Perfect Bath Recipe
I hate baths. Despise them. Atleast that's what I used to say. They always seemed so boring and gross. Why would anyone want to sit in a hot tub of their own grossness?! Because is freaking amazing thats why! :D My massage therapist told me to go home and draw a nice hot bath and try to push the bad energy away. So I thought I should give it one last shot before I said adios to baths forever. Here's my list of bath time essentials. Candles (Lots and lots of candles) Bath Pillow (Pretty much a deal closure. No pillow no bath) Oatmeal Your favorite essential oils Epsom Salt (Don't buy those fancy schmancy ones. Just get the one thats in the milk carton looking box) Wine (or beverage to preference) Ice Water (Very important!) Relaxing Music (Look up Weightless. It's the most relaxing song in the world, literally) Dr. Bronners Castille Soap (If you need bubbles) Face Mask (Make sure there's no nasty ingredients!) TaDa! The perfect bath! Now go relax and soak up the peace
Cookies Make Everyone Smile
Hello! So heres an update. Ive been finding it very difficult to remember to post stuff. I have been going through a very difficult time lately. My boyfriend broke up with me and we live together and my body is not happy with all the extra stress. My dad and him bought me a motorcycle class so I can get my endorsement. Lets just say it almost killed me but I did it! I don't want to not do something that I love because I'm in pain. I also love baking. Ive been makung breads, cookies and I attempted to make my own sourdough starter but I killed it haha so to make my clean up a but easier I got a silicone baking mat. It's amazing! It works just as well as thoughs super expensive one but it's way cheaper. No more having to scrape burnt cookie off the cookie sheet! Yay! So here's to all of us spoonies out there, we can do anything we set our minds to. Do what makes you happy everyday :) Here's the link to thoughs awesome mats I have found my favorite silicone mats! Just to disclose I did get these at a disounted rate but I love them. They are just as good as my dads SilpatĀ Ā you can find it on amazon herehttp://www.amazon.com/gp/product/B00T2BSRSK?keywords=silicon%20baking%20mat%20taylor&qid=1444622577&ref_=sr_1_1&sr=8-1 *Disclaimer*- I did get the mats at a discounted price but I really do love them and have been looking to buy some.
No Oneās Out There..Yet
I know Iām just talking to empty space here but hopefully someday someone will be reading this :).Ā
I am finally getting some answers! Arthritis is a definite diagnosis and also selective igm deficiency. Possible ehlers danlos syndrome is on the table still and I will be seeing a geneticist in November. The other day my doctor heard a heart murmur on the left side. Right side sounded ok. I get to see a cardiologist Wednesday. Hopefully itās nothing serious.Ā
Hello world!
This is my very first post onto my new blog Ms. Chronic. I have chronic pain caused from Ehlers Danlos Syndrome, Hypermobility and Fibromyalgia. Itās tough going most days but with the support I have from my wonderful boyfriend, my awesome doctors and my family and friends itās much easier. Also the drugs help haha well kinda