Sofy the Sclero_PBC Warrior

My Blog about Scleroderma and PBC

[sofyscleropbcwarrior]

Being an autoimmune disease warrior is not for the faint of heart. Despite the major flare I'm having, I have to pick up and keep on going. And it sucks. It sucks big time.

This has been become a normal part of life for me. Some of the people in my life have asked what it's Ike. It's tough to describe, but lately it feels like a low grade fever with body aches, but times 1M.

I'm always in pain but today I may take some ibuprofen for relief. I've been like this for a week and I'm exhausted by it. I try to keep unnecessary meds, fried foods and alcohol out of my diet as much as I possibly can. It does not help the Primary Biliary Cirrhosis for me to consume these things. So please recognize that what you consume is a prescription within itself!

My skin has felt like its on fire lately, I have been itching like crazy and I know its because my liver enzymes are elevated... with all the stress I've been under - end of school, running my business, job interviews, finalizing divorce, not eating or sleeping right - everything has just caught up to me.

So I'm working extra hard to maintain a positive attitude, because it go a long way in helping me with my mindflow! I heard someone say emotions are energy in motion and we need to work on making it positive and contagious 💜

[sofyscleropbcwarrior]

What does a flare look like to you?

Ugh!

I have a gripe to pick with my flares. They come out of nowhere and happen for no damn reason sometimes. 

I have started referring to my flares as another entity in itself. I call her Goldilocks. Yes, Goldilocks, like the little girls from the Three Little Bears story. 

Why you ask? Well, I can’t be cold, or hot. I have to be just right at all given times. If I get too cold I get a Raynaud’s flare - and those are painful - I also get very stiff and the joint pain sets in. I also can’t be too hot. When that happens, I get a Raynaud’s flare - seems unfair right?! I also start to swell and get joint pain. 

I laugh because crying isn’t going to help anything. The best part of having these experiences is that I have learned to see the signs and be prepared for when the flares happen. It’s not a matter of prevention, cause once a flare has decided to rear it’s ugly head - Goldilocks comes on full force. 

As I’m typing this I feel the joint pain starting to intensity. Lord have mercy.

[sofyscleropbcwarrior]

First Day Here

Hello and Welcome! It’s Sofy here 💜

I decided to start a blog so I can share my experience about being an Autoimmune Warrior.

I have 2 Autoimmune diseases: Scleroderma and Primary Biliary Cirrhosis(PBC)

I was diagnosed with Scleroderma in 2009. I am pretty sure I have dealt with several health issues prior to being diagnosed, but that was the year that my journey started.

I was diagnosed with PBC in 2014 and it was only because of my amazing Nurse Care Practitioner Kirsten because she was curious of my latest symptoms - we worked together - and she wasn’t going to stop until she had an answer.

More on those journeys in later posts. I just wanted to share a small insight into my background. 

FYI: I cuss, I have inappropriate and dark humor, and idgaf what anyone thinks. You’re gonna see a lot of memes, rants, educational info about my journey. So sit tight and enjoy the ride!