[spoonies-thoughts]

I love when I'm normal people sick and my body turns from shitty to shittier 🙃

[spoonies-thoughts]

Person: Wait you're STILL sick?

Me: *throws a dictionary at their face with the word chronic highlighted*

[aguitada]

Quick PSA

There’s a huge difference between being tired / fatigued and being chronically ill and exhausted / fatigued due to illness.

I know because I wasn’t always sick.

Please, don’t tell disabled / chronically ill people to “just push through” or say something that invalidates their exhaustion (especially if it’s literal energy producing dysfunction) like “ you don’t know tired till you have kids”.

Yes, both of these have been said to me, no, I was too exhausted to say anything.

[spoonies-thoughts]

You can't just slap a handicapped sticker on something and call it accessible lmao

[spoonies-thoughts]

Having a chronic illness isn't like the romanticized versions you see from Hollywood. Having a chronic illness is not being able to sit down because you hurt so bad but not being able to stand either. Having a chronic illness is standing at the shower for two hours hoping you will have the strength to get in but not being able to put on foot after the other. Having a chronic illness is screaming and crying at home because it hurts so bad that you can't even take your clothes off, but the next day going to work and smiling because that's what you have to do. Having a chronic illness is puking for hours in the bathroom and then continuing with your day because it's completely normal for you. Having a chronic illness is like having the pain of death, but not actually dying.

[euphoniumlover]

That's the thing about chronic illness

It never goes away

It can’t be cured

Positive thinking doesn’t make it feel better

It’s not in my head

Just because you can’t see it doesn’t mean it’s not there

Just because I’m hanging out and laughing doesn’t mean it doesn’t hurt

It hurts ALL THE TIME, and by all the time, I really and truly mean from the minute I wake up to the minute I go to bed.

I decorate my cane to make myself feel better about having to use one, not to entertain anyone else. It does not make me feel good for you to comment on it, even if it’s about how cool it is, because I am PAINFULLY (no pun intended) aware of the fact that I have to use one. I don’t need anyone to remind me, and it’s honestly really irritating. So don’t.

When I say I’m tired, don’t try to relate. It’s not nearly the same thing.

You can’t imagine my pain, so don’t suggest to me how to treat it.

Sometimes I just need to complain, and I prefer not to have advice; I just want to vent.

Sometimes it’s completely overwhelming and I just need you to hold me.

When I don’t go out, it’s not because I don’t want to. When I say I can’t, it’s because I physically can’t.

It’s incredibly hard, and I’m still figuring out how to deal with it. All I want is for you to support me. That’s it.

[deepsthots]

Dont be surprised..

[spoonies-thoughts]

What do you do when you can’t anymore?

Myself (via spoonies-thoughts)

[spoonies-thoughts]

What do you do when you can’t anymore?

Myself (via spoonies-thoughts)

[spoonies-thoughts]

What do you do when you can't anymore?

Myself

[spoonies-thoughts]

Been a long couple of weeks... Just taking some time to myself. I hope you are all well 💜

[guitarplayermrs]

I’m here. Ily.

Depression Suicide Hotline (US, UK, Canada & Singapore): 1-800-SUICIDE (2433) Suicide hotline (New Zealand): 0800 543 354 Depression hotline: [phone] Suicide Crisis Line: 1-800-999-9999 National Suicide Prevention Helpline: 1-800-273-TALK (8245) National Adolescent Suicide Helpline: 1-800-621-4000 Postpartum Depression: 1-800-PPD-MOMS NDMDA Depression Hotline – Support Group: 1-800-826-3632 Veterans: 1-877-VET2VET Crisis Help Line – For Any Kind of Crisis: 1-800-233-4357 Suicide & Depression Crisis Line – Covenant House: 1-800-999-9999 Domestic Abuse National Child Abuse Helpline: 1-800-422-4453 National Domestic Violence Crisis Line: 1-800-799-SAFE (7233) National Domestic Violence Hotline (TDD): 1-800-787-32324 Center for the Prevention of School Violence: 1-800-299-6504 Child Abuse Helpline: 1-800-4-A-CHILD (1-800-422-4453) Domestic Violence Helpline: 1-800-548-2722 Healing Woman Foundation (Abuse): 1-800-477-4111 Child Abuse Hotline Support & Information: 1-800-792-5200 Women’s Aid National Domestic Violence Helpline (UK): 0345 023 468 Sexual Abuse Centre (UK): 0117 935 1707 Sexual Assault Support (24/7, English & Spanish): 1-800-223-5001 Domestic & Teen Dating Violence (English & Spanish): 1-800-992-2600 Rape Crisis England & Wales: 0808 802 9999 1(open 2 - 2.30pm 7 - 9.30pm) e-mail [email protected] Rape Crisis Scotland: 08088 01 03 02 every day, 6pm to midnight Alcohol & Drug Abuse National Association for Children of Alcoholics: 1-888-55-4COAS (1-888-554-2627) National Drug Abuse: 1-800-662-HELP (4357) Al-Anon/Alateen Hope & Help for young people who are the relatives & friends of a problem drinker): 1-800-344-2666 Alcohol/Drug Abuse Hotline: [phone]-HELP (4357) Be Sober Hotline: 1-800-BE-SOBER (1-800-237-6237) Cocaine Help Line: 1-800-COCAINE (1-800-262-2463) 24 Hour Cocaine Support Line: 1-800-992-9239 Ecstasy Addiction: 1-800-468-6933 Marijuana Anonymous: 1-800-766-6779 Drinkline (UK): 0800 9178282 Frank (UK): 0800776600 Youth & Teen Hotlines National Youth Crisis Support: 1-800-448-4663 Youth America Hotline: 1-877-YOUTHLINE (1-877-968-8454) Covenant House Nine-Line (Teens): 1-800-999-9999 Boys Town National: 1-800-448-3000 Teen Helpline: 1-800-400-0900 TeenLine: 1-800-522-8336 Youth Crisis Support: 1-800-448-4663 or 1-800-422-0009 Runaway Support (All Calls are Confidential): 800-231-6946 Childline: (UK Only) 0800 1111 Kids Helpline (Australia) 1800 55 1800 b-eat youthline (UK): 08456347650 (open Mon-Fri 4.30pm - 8.30pm, Saturday 1pm-4.30pm) Pregnancy Hotlines AAA Crisis Pregnancy Center: 1-800-560-0717 Pregnancy Support: 1-800-4-OPTIONS (1-800-467-8466) Pregnancy National Helpline: 1-800-356-5761 Young Pregnant Support: 1-800 550-4900 Gay and Lesbian Hotlines The Trevor Helpline (For homosexuality questions or problems): 1-800-850-8078 Gay & Lesbian National Support: 1-888-THE-GLNH (1-888-843-4564) Gay, Lesbian, Bisexual, and Transgender (GLBT) Youth Support Line: 1-800-850-8078 Lesbian & Gay Switchboard: (UK Only) 0121 622 6589 Lothian Gay & Lesbian Switchboard – Scotland: (Scotland Only) 0131 556 4049 Other Hotlines Self-Injury Support: 1-800-DONT CUT (1-800-366-8288) (www.selfinjury.com) Eating Disorders Awareness and Prevention: 1-800-931-2237 (Hours: 8am-noon daily, PST) Eating Disorders Center: 1-888-236-1188 Help Finding a Therapist: 1-800-THERAPIST (1-800-843-7274) Panic Disorder Information and Support: 1-800-64-PANIC (1-800-647-2642) TalkZone (Peer Counselors): 1-800-475-TALK (1-800-475-2855) Parental Stress Hotline: [phone] National AIDS Helpline: (UK) 0800 567 123 Samaritans (UK): 08457909090 e-mail [email protected] b-eat eating disorder support (UK): 0845 634 14 14 (only open Mon-Fri 10.30am-8.30pm and Saturday 1pm-4.30pm) e-mail: [email protected] Mind infoline (UK mental health information): 0300 123 3393 e-mail: [email protected] Mind legal advice (UK): 0300 466 6463 [email protected] Cruse Bereavement Care (UK): 08444779400 [email protected]

Suicide hotlines: Austria 01-713-3373 Australia 1-800-817-569 Barbados 429-9999 Brazil 21-233-9191 Canada 514-723-4000 China 852-2382-0000 Costa Rica 506-253-5439 Denmark 70-201-201 Egypt 7621602 Estonia 6-558-088 Finland 040-5032199 France 01-45-39-4000 Guatemala 502-254-1259 Holland 0900-0767 Honduras 504-237-3623 Hungary 62-420-111 India 91-22-307-3451 Italy 06-7045-4444 Japan 3-5286-9090 Maylaysia 03-756-8144 Maurititus 46-48-889 or 800-93-93 Mexico 525-510-2550 New Zealand 4-473-9739 Nicarague 505-268-6171 Norway 815-33-300 Poland 52-70-000 Portugal 239-72-10-10 Republic of Ireland 1850-60-90-90 Russia 8-20-222-82-10 Singapore 800-221-4444 or 000-227-0309 South Africa 0861-322-322 South Korea 2-715-8600 Spain 91-459-00-50 Sri Vincent 1-692-909 St. Vincent 809-456-1044 Sweden 031-711-2400 Switzerland 143 Thailand 02-249-9977 Trinidad & Tobago 868-645-2800 Ukraine 0487-327715 or 0482-226565 United Kingdom 08457-90-90-90 United States 1-800-SUICIDE (7842433), or 1-800-TALK (8255), or 1-800-827-7571 Reblog it.You may save a life!

[sunsethummingbird-deactivated20]

Can abled people please just let me be mad? Like, I am allowed to be mad, frustrated, upset and pessimistic about my illness sometimes. I am allowed to cry and be fed up with a treatment not working again.

I should not be expected to perform constant, enthusiastic optimism just because you’re uncomfortable with anything else.

[madgirlf]

being chronically ill is so fucking hard. it’s so hard to fight my own body. it’s so hard to wake up and want to have a good day but not be able to. it’s so hard to feel like I’m wasting so many days laying in bed trying to heal. it’s so hard not knowing when this pain will end. it’s so hard to take medicine to feel better but then get sick from the side effects. it’s so hard to feel guilty all the time about how my illness affects the people I love. it’s so hard waiting to have my life back. it’s so hard not knowing if it’ll ever happen.

to anyone else in this battle: I see you. I hear you. you are such a warrior.

[gayhanguangjun]

If you’re disabled:

Parents/caregivers saying things like “I wasted so much money on you” and “it takes so much money/effort to take care of you” and “be grateful I’m willing to give this much for you” are wrong.

Yes, it’s expensive (whether financially or physically or emotionally or what have you) to take care of a disabled person, but that is their responsibility. If they’re your parents, they signed up for the job as soon as they had a kid.

Disability is not under your control. It’s not your fault that it’s expensive.

No one should use that to guilt you or control you. If they do then they are wrong, and they are cruel.

[spoonies-thoughts]

Humans think that we’re immune. Nothing is scarier than losing your health. Nothing is scarier than finding out that you aren’t immune to bad things, that you are not, in fact, invincible.

[thefibrodiaries]

I don’t think abled people understand the amount of time and energy being chronically ill actually takes up. It’s like a constant battle against our bodies every single day.

[lymefight]

Truth. Full on battle everyday. No breaks.