I love when I'm normal people sick and my body turns from shitty to shittier đ

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Claire Keane
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@spoonies-thoughts
I love when I'm normal people sick and my body turns from shitty to shittier đ
Person: Wait you're STILL sick?
Me: *throws a dictionary at their face with the word chronic highlighted*
Quick PSA
Thereâs a huge difference between being tired / fatigued and being chronically ill and exhausted / fatigued due to illness.
I know because I wasnât always sick.
Please, donât tell disabled / chronically ill people to âjust push throughâ or say something that invalidates their exhaustion (especially if itâs literal energy producing dysfunction) like â you donât know tired till you have kidsâ.
Yes, both of these have been said to me, no, I was too exhausted to say anything.
You can't just slap a handicapped sticker on something and call it accessible lmao
Having a chronic illness isn't like the romanticized versions you see from Hollywood. Having a chronic illness is not being able to sit down because you hurt so bad but not being able to stand either. Having a chronic illness is standing at the shower for two hours hoping you will have the strength to get in but not being able to put on foot after the other. Having a chronic illness is screaming and crying at home because it hurts so bad that you can't even take your clothes off, but the next day going to work and smiling because that's what you have to do. Having a chronic illness is puking for hours in the bathroom and then continuing with your day because it's completely normal for you. Having a chronic illness is like having the pain of death, but not actually dying.
That's the thing about chronic illness
It never goes away
It canât be cured
Positive thinking doesnât make it feel better
Itâs not in my head
Just because you canât see it doesnât mean itâs not there
Just because Iâm hanging out and laughing doesnât mean it doesnât hurt
It hurts ALL THE TIME, and by all the time, I really and truly mean from the minute I wake up to the minute I go to bed.
I decorate my cane to make myself feel better about having to use one, not to entertain anyone else. It does not make me feel good for you to comment on it, even if itâs about how cool it is, because I am PAINFULLY (no pun intended) aware of the fact that I have to use one. I donât need anyone to remind me, and itâs honestly really irritating. So donât.
When I say Iâm tired, donât try to relate. Itâs not nearly the same thing.
You canât imagine my pain, so donât suggest to me how to treat it.
Sometimes I just need to complain, and I prefer not to have advice; I just want to vent.
Sometimes itâs completely overwhelming and I just need you to hold me.
When I donât go out, itâs not because I donât want to. When I say I canât, itâs because I physically canât.
Itâs incredibly hard, and Iâm still figuring out how to deal with it. All I want is for you to support me. Thatâs it.
Dont be surprised..
What do you do when you canât anymore?
Myself (via spoonies-thoughts)
What do you do when you canât anymore?
Myself (via spoonies-thoughts)
What do you do when you can't anymore?
Myself
Been a long couple of weeks... Just taking some time to myself. I hope you are all well đ
Iâm here. Ily.
Depression Suicide Hotline (US, UK, Canada & Singapore): 1-800-SUICIDE (2433) Suicide hotline (New Zealand): 0800Â 543Â 354 Depression hotline: 1-630-482-9696 Suicide Crisis Line: 1-800-999-9999 National Suicide Prevention Helpline: 1-800-273-TALK (8245) National Adolescent Suicide Helpline: 1-800-621-4000 Postpartum Depression: 1-800-PPD-MOMS NDMDA Depression Hotline â Support Group: 1-800-826-3632 Veterans: 1-877-VET2VET Crisis Help Line â For Any Kind of Crisis: 1-800-233-4357 Suicide & Depression Crisis Line â Covenant House: 1-800-999-9999 Domestic Abuse National Child Abuse Helpline: 1-800-422-4453 National Domestic Violence Crisis Line: 1-800-799-SAFE (7233) National Domestic Violence Hotline (TDD): 1-800-787-32324 Center for the Prevention of School Violence: 1-800-299-6504 Child Abuse Helpline: 1-800-4-A-CHILD (1-800-422-4453) Domestic Violence Helpline: 1-800-548-2722 Healing Woman Foundation (Abuse): 1-800-477-4111 Child Abuse Hotline Support & Information: 1-800-792-5200 Womenâs Aid National Domestic Violence Helpline (UK): 0345Â 023Â 468 Sexual Abuse Centre (UK): 0117Â 935Â 1707 Sexual Assault Support (24/7, English & Spanish): 1-800-223-5001 Domestic & Teen Dating Violence (English & Spanish): 1-800-992-2600 Rape Crisis England & Wales: 0808Â 802Â 9999Â 1(open 2 - 2.30pm 7 - 9.30pm) e-mail [email protected] Rape Crisis Scotland: 08088Â 01Â 03Â 02 every day, 6pm to midnight Alcohol & Drug Abuse National Association for Children of Alcoholics: 1-888-55-4COAS (1-888-554-2627) National Drug Abuse: 1-800-662-HELP (4357) Al-Anon/Alateen Hope & Help for young people who are the relatives & friends of a problem drinker): 1-800-344-2666 Alcohol/Drug Abuse Hotline: 1-800-662-HELP (4357) Be Sober Hotline: 1-800-BE-SOBER (1-800-237-6237) Cocaine Help Line: 1-800-COCAINE (1-800-262-2463) 24 Hour Cocaine Support Line: 1-800-992-9239 Ecstasy Addiction: 1-800-468-6933 Marijuana Anonymous: 1-800-766-6779 Drinkline (UK): 0800Â 9178282 Frank (UK): 0800776600 Youth & Teen Hotlines National Youth Crisis Support: 1-800-448-4663 Youth America Hotline: 1-877-YOUTHLINE (1-877-968-8454) Covenant House Nine-Line (Teens): 1-800-999-9999 Boys Town National: 1-800-448-3000 Teen Helpline: 1-800-400-0900 TeenLine: 1-800-522-8336 Youth Crisis Support: 1-800-448-4663 or 1-800-422-0009 Runaway Support (All Calls are Confidential): 800-231-6946 Childline: (UK Only) 0800Â 1111 Kids Helpline (Australia) 1800Â 55Â 1800 b-eat youthline (UK): 08456347650 (open Mon-Fri 4.30pm - 8.30pm, Saturday 1pm-4.30pm) Pregnancy Hotlines AAA Crisis Pregnancy Center: 1-800-560-0717 Pregnancy Support: 1-800-4-OPTIONS (1-800-467-8466) Pregnancy National Helpline: 1-800-356-5761 Young Pregnant Support: 1-800Â 550-4900 Gay and Lesbian Hotlines The Trevor Helpline (For homosexuality questions or problems): 1-800-850-8078 Gay & Lesbian National Support: 1-888-THE-GLNH (1-888-843-4564) Gay, Lesbian, Bisexual, and Transgender (GLBT) Youth Support Line: 1-800-850-8078 Lesbian & Gay Switchboard: (UK Only) 0121Â 622Â 6589 Lothian Gay & Lesbian Switchboard â Scotland: (Scotland Only) 0131Â 556Â 4049 Other Hotlines Self-Injury Support: 1-800-DONT CUT (1-800-366-8288) (www.selfinjury.com) Eating Disorders Awareness and Prevention: 1-800-931-2237 (Hours: 8am-noon daily, PST) Eating Disorders Center: 1-888-236-1188 Help Finding a Therapist: 1-800-THERAPIST (1-800-843-7274) Panic Disorder Information and Support: 1-800-64-PANIC (1-800-647-2642) TalkZone (Peer Counselors): 1-800-475-TALK (1-800-475-2855) Parental Stress Hotline: 1-800-632-8188 National AIDS Helpline: (UK) 0800Â 567Â 123 Samaritans (UK): 08457909090 e-mail [email protected] b-eat eating disorder support (UK): 0845Â 634Â 14Â 14 (only open Mon-Fri 10.30am-8.30pm and Saturday 1pm-4.30pm) e-mail: [email protected] Mind infoline (UK mental health information): 0300Â 123Â 3393 e-mail: [email protected] Mind legal advice (UK): 0300Â 466Â 6463 [email protected] Cruse Bereavement Care (UK): 08444779400 [email protected]
Suicide hotlines: Austria 01-713-3373 Australia 1-800-817-569 Barbados 429-9999 Brazil 21-233-9191 Canada 514-723-4000 China 852-2382-0000 Costa Rica 506-253-5439 Denmark 70-201-201 Egypt 7621602 Estonia 6-558-088 Finland 040-5032199 France 01-45-39-4000 Guatemala 502-254-1259 Holland 0900-0767 Honduras 504-237-3623 Hungary 62-420-111 India 91-22-307-3451 Italy 06-7045-4444 Japan 3-5286-9090 Maylaysia 03-756-8144 Maurititus 46-48-889 or 800-93-93 Mexico 525-510-2550 New Zealand 4-473-9739 Nicarague 505-268-6171 Norway 815-33-300 Poland 52-70-000 Portugal 239-72-10-10 Republic of Ireland 1850-60-90-90 Russia 8-20-222-82-10 Singapore 800-221-4444 or 000-227-0309 South Africa 0861-322-322 South Korea 2-715-8600 Spain 91-459-00-50 Sri Vincent 1-692-909 St. Vincent 809-456-1044 Sweden 031-711-2400 Switzerland 143 Thailand 02-249-9977 Trinidad & Tobago 868-645-2800 Ukraine 0487-327715 or 0482-226565 United Kingdom 08457-90-90-90 United States 1-800-SUICIDE (7842433), or 1-800-TALK (8255), or 1-800-827-7571 Reblog it.You may save a life!
Can abled people please just let me be mad? Like, I am allowed to be mad, frustrated, upset and pessimistic about my illness sometimes. I am allowed to cry and be fed up with a treatment not working again.
I should not be expected to perform constant, enthusiastic optimism just because youâre uncomfortable with anything else.
being chronically ill is so fucking hard. itâs so hard to fight my own body. itâs so hard to wake up and want to have a good day but not be able to. itâs so hard to feel like Iâm wasting so many days laying in bed trying to heal. itâs so hard not knowing when this pain will end. itâs so hard to take medicine to feel better but then get sick from the side effects. itâs so hard to feel guilty all the time about how my illness affects the people I love. itâs so hard waiting to have my life back. itâs so hard not knowing if itâll ever happen.
to anyone else in this battle: I see you. I hear you. you are such a warrior.
If youâre disabled:
Parents/caregivers saying things like âI wasted so much money on youâ and âit takes so much money/effort to take care of youâ and âbe grateful Iâm willing to give this much for youâ are wrong.
Yes, itâs expensive (whether financially or physically or emotionally or what have you) to take care of a disabled person, but that is their responsibility. If theyâre your parents, they signed up for the job as soon as they had a kid.
Disability is not under your control. Itâs not your fault that itâs expensive.
No one should use that to guilt you or control you. If they do then they are wrong, and they are cruel.
Humans think that weâre immune. Nothing is scarier than losing your health. Nothing is scarier than finding out that you arenât immune to bad things, that you are not, in fact, invincible.
I donât think abled people understand the amount of time and energy being chronically ill actually takes up. Itâs like a constant battle against our bodies every single day.
Truth. Full on battle everyday. No breaks.