#alpha1awareness

[jenniferzinsius-blog1]

One of my favorite pictures of my pops and I. I miss you so much old man. I love you so much and just want to hug you again! One day we will be together again and until then you will just have to visit me in my dreams. 💔 #fatherdaughter #missyou #missyoupops❤️ #foreverinmyheart #alpha1awareness #organdonationawareness https://www.instagram.com/p/B1RsQZgFo4B/?igshid=1s4recsu72ccc

[jenniferzinsius-blog1]

Flash back to 9 weeks ago today when Pops got his new lungs! This journey has been super long and the most stressful thing I ha e ever been through but we know in a few more weeks (hopefully) it will all be worth it! I love you pops! You got this! #alpha1 #alpha1antitrypsindeficiency #alpha1awareness #organdonation #organdonationawareness #organdonationsaveslives #lungtransplant #doublelungtransplant #lungtransplantsurvivor #wewillgetthroughthis #withGodallthingsarepossible #wexnermedicalcenter #osu (at Ross Heart Hospital) https://www.instagram.com/p/BwyNT-4gC65/?utm_source=ig_tumblr_share&igshid=19v66sarivr7j

[alpha1awareness]

Alpha-1 Awareness is dedicated to contributing a minimum of 10% of its funds raised towards research to find a cure for this condition. In 2018, we went above and beyond this target, donating £25,000 to the patron of the Charity, Prof Lomas, Vice-Provost of Health at University College London (UCL). In 2019, we have continued this tradition, donating £10,000 towards Prof Lomas’ continued research towards a cure.

To read more, click here: https://www.alpha1.uk/portfolio/5359

[mikenaylorrealtor]

We had a great day at the Alpha-1 walk. Thanks to my friends and family I surpassed my fundraising goal in ONE day! November is Alpha-1 awareness month...so if you haven’t already please check out my fundraising page (link on my IG profile) and make a donation if you can. #alpha1antitrypsindeficiency #alpha1awareness #alpha1walk #settingnewgoals #alpha1parents (at Santa Monica, California) https://www.instagram.com/p/BpdMWw7B9uy/?utm_source=ig_tumblr_share&igshid=1o0fezwru5ach

[mikenaylorrealtor]

Sometimes life really takes you by surprise. There's the good stuff and the bad stuff...and then there's those moments that, in an instance, make the path ahead very challenging. Being immersed in parenthood is probably one of the most incredible challenges we can both simultaneously endure and enjoy. My wife, Victoria, and I feel incredibly blessed to share our lives with two wonderful boys. But a couple of months ago some blood tests for Julian and Desmond came back and, in an instance, that rosy path ahead became one with concern, questions, and uncertainty. Both of our boys have a genetic liver disorder called Alpha-1 Antitrypsin. It's passed on from parents to their children through genes. I have a mutant gene (likely from my father) and Victoria has one, too. Because both of us have a MZ genotype it means that any child we have has a chance of getting 1 of 3 possible genotypes: MM (healthy), MZ (carrier, like us, likely with no symptoms), or ZZ (Alpha-1). Julian and Desmond are both ZZ and had a 25% chance of getting this gene combination. Alpha-1 Antitrypsin is a enzyme in the liver that gets released into the bloodstream and protects the lungs. However, people with the Alpha-1 disorder cannot fully get the enzyme into the bloodstream....leaving the lungs vulnerable to emphysema at an early age. And because the enzyme gets trapped in the liver it scars the liver leaving it prone to cirrhosis. So, it's a bit of a double-whammy. Transplants are a real possibility. There's no medicine or cure for Alpha-1 and it's not reversible (yet!). This all really new to us but this Saturday we’re taking part in a fundraising walk and all donations go directly to the Alpha-1 Foundation who are looking for a cure. If you can, please donate. Here’s the link: http://give.alpha1.org/goto/JulianANDDesmond #alpha1awareness #alpha1antitrypsindeficiency #gratefuldad #justadapt #newnormal #positivevibrations https://www.instagram.com/p/BpaCk4SDOAD/?utm_source=ig_tumblr_share&igshid=19xjgysyevyl8