#apollo chats

[ticslikedabee]

Me: oh i sure have liked not ticcing all that much these past few weeks I’m sure todays going to be the same-

My brain: :)

Me: no

My brain: :) time to yell

Me: nO

[ticslikedabee]

When your disability is disabling

[ticslikedabee]

Something really cool happened yesterday

So my Nan has a dog, she’s the cutest thing ever, her name is Luna.

She was climbing all over me, sniffing me, licking my face etc. specifically sniffing where my sensor was, which she’s never done before. Once we managed to get her off me, my sensor actually alarmed that my blood sugars were low

So my nans dog actually detected my blood sugars were low before my sensor went off

She also came and checked me after she got back from my walk, and was satisfied I was better

[ticslikedabee]

Hello there I forgot I had this account but I’m BACK

I’ve started writing fanfiction in the last week or so, and now I’m writing a fic about a character having tics like mine because I feel like there’s not enough fanfiction of characters with a tic disorder.

And we’ll, they say write fanfiction for yourself so let’s do this

[ticslikedabee]

Ughhh I found out something that my store manager said to my line manager about my tic disorder and it’s actually pissed me off so badly and I’m not sure how I’m going actually around the store manager now

Background to all of this: two years ago on Easter Sunday I had a really bad tic attack. Like, REALLY bad. I’m talking eye rolling tics so bad I was basically blind for 45 minutes and it was the first attack I cried in frustration over. So now I have quite bad anxiety around Easter and that affects my tics as well

So I made a plan with my line manager that I wouldn’t do long periods of time on the till, because that makes my tics WORSE. But no. My store manager decided to override that and try and put me on the till for the day.

I actually stood up for myself and told him that no, I will not be doing that.

And this motherfucker!! He then went to my line manager later and said he feels like I was “putting it on” with my tics and that I “wanted to be lazy” !!!

I already knew I had a target on my back because I’m disabled. Didn’t expect the ableism to show that badly though. This man had the AUDACITY to say that to someone who’s had to physically hold me up to walk because I couldn’t actually stand properly due my tics. The audacity. And I work for a company that supposedly prides itself on being diverse.

[ticslikedabee]

I have synesthesia and once we figured that out it made things make so much more sense.

I used to describe my pain by describing the “pitch” -so a stinging pain is really high pitched, but an achy, dull sort of pain is really low pitched - and it always confused my parents.

Then we realised that I can hear my pain. Which is why I would describe it as pitches.

Add on the fact everyone has a colour and when I think and interact with them all I can think of is that they are that colour. My two best friends are yellow and blue, while my sister and brother are pink and blue. My mother is blue, and my father is red.

Its an interesting thing, to think other people don’t experience the world like I do

[ticslikedabee]

Hello wow I’m back to complain a little bit about how I had two different people today tell me “you’re not disabled”

Interesting take when by UK law, I am classed as disabled. I have a chronic illness. Actually I have TWO chronic illnesses. Plus my tic disorder. Which I’ve had for,, 4 1/2 years.

So yes I am disabled and it took me 2 years to even use that word. Now I am proud of using it. I have HIDDEN disabilities. That doesn’t mean I’m not disabled.

The fact that two people who I know and are my friends told me “you’re not disabled, you’re just unique” made me feel a bit off today. Being disabled isn’t necessarily a bad thing. Sometimes it’s just life. Telling me I’m not disabled won’t change the fact that I AM

[ticslikedabee]

Today I am “barking mad”

Already made several people ask where the dog is - there is no dog, it is just me!