Discover Top Posts Tagged with #ash leaf spots

Identical Twins Diagnosed With TSC

Day 27 of Blogging for TSC Awareness by guest blogger Jobina Antochow-Piekema (Clairmont, Alberta) At our very first ultrasound we were given the great news we were expecting mono/di (identical) twins. During a routine ultrasound at 25 weeks we were told the twins both had cardiac rhabdomyomas and a possible diagnosis of Tuberous Sclerosis. At 28 weeks pregnant after fetal echos, ultrasounds and…

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#ash leaf spots #Clairmont Alberta Canada #identical twins with tuberous sclerosis complex #Jobina Antochow-Piekema #NICU #rhabdomyomas #seizures #TSC1 #tuberous sclerosis #tuberous sclerosis complex awareness #ultrasound

He is our superhero.

Day 8 of Guest Blogging for TSC Awareness

by guest blogger Melissa Courtright (Caldwell, Idaho)

We have two children. An older daughter Robin who is 11 (non TS), and Remy, who just turned three. He started having strange episodes at 4 months old that were later identified as seizures. He was officially diagnosed at 10 months old after having up to 14 seizures a day, and they did an MRI and…

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#Antioxidant #ash leaf spots #Caldwell #Epilepsy #Melissa Courtright #seizures #special needs #therapy #TSC #tuberous sclerosis #tuberous sclerosis complex awareness

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