The best laid plans... 😕 Charlie was supposed to have a biopsy today, however his creatinine was up on Monday to 63. Today we went to the hospital expecting to have our usual clinic visits and to stay overnight. After a busy day (bloodwork, clinic, ultrasound, x-ray, various consultations), we were able to go home for the night. His creatinine is back to 56. The biopsy is now tomorrow (Wednesday) morning at 9am, however the central line won’t be coming out for a little while. Charlie is really hoping he doesn’t have to stay overnight on Wednesday...It has been a challenging week. Charlie is supposed to drink 2L of water everyday. He has been doing it, but it is a constant battle of wills to get him to actually do it. Then the hiccup with his creatinine. They (renal transplant team) are concerned that it is a rejection episode. This is quite normal and doesn’t mean full rejection of the new organ. One of Charlie’s doctors explained it very well today. She said ‘Imagine that the organ is not recognized by the body and the body is wondering what is happening so it sends soldiers to fight it. Essentially what we want to do is put these soldiers to sleep. Occasionally, a few of them wake up and we have to treat it and get them back to sleep through medication changes, etc.’. Makes sense, right? Anyway, he seems alright....not super happy about the water or all of the meds or staying overnight at the hospital, but generally, for a 6-year old...he is a champ. Here’s hoping we can come home tomorrow after the procedure. 🦁
