#craniokid

[uniquelymore]

I wanted to share this picture with you and the story behind it. Brionna was looking out the window, it was her favorite spot and she spent most of her time there. While she was sitting there she closed her eyes, I asked if she was okay and she said Yes, just give me a moment. I thought she looked so peaceful so I took a picture. After awhile she opened her eyes and I asked again if she was okay. She said Yes, I was praying! Now everything will be okay! ❤ #craniokid #chiariprincess #chiarikid #cranioprincess #praying #trustingod #trustinthelord #bushnellnebraska #uniquelymore #faithlikeachild https://www.instagram.com/p/BwYRyTRBVfj/?utm_source=ig_tumblr_share&igshid=15r24tiymjtky

[uniquelymore]

Happy New Year! :) I want to thank you all for your orders the past couple months! It means so much to me that you picked me to order from. The past few months have been busy around here. We got our son Connors medical stuff under control just in time to find out that our daughter Brionna has Chiari on top of everything else. It is so nice to finally know what is going on with her, we have been fighting with her Drs for years. Right now we are working with the her team of Dr's to decide what is the best thing to do for her. They might leave things as is or there are a few different types of surgeries they are talking about doing. This doesn't affect my Etsy store, other than it might take me a little while to get back to you if you message me. Thank you again! I really appreciate you all! ❤ #etsymom #chiarimalformation #chiarimom #chiari #craniokid #chiarikid #mydaughtermyhero #toughkid #etsystore #etsythankyou #bestcustomers #busylife #momlife #uniquelymore #craniosynostosis #craniosynostosischiari (at Bushnell, Nebraska) https://www.instagram.com/p/BsI192rgxma/?utm_source=ig_tumblr_share&igshid=1qwuo7oa3uwm1