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Infusion day! Pumping my body with other peoples antibodies in order to strengthen my weakened immune system! Thank goodness my husband helps me -- I have a needle phobia! 🥴 #cvidawareness #idf #immunecompromised #gratefulthankfulblessed https://www.instagram.com/p/B_LcRkbH81n/?igshid=up4fiqo6o10q
So for the last 5 weeks I have been dealing with bronchitis, a sinus infection, and now a head cold. My energy level is pretty much at 0. #cvid #cvidawareness #infusion #infusionday #tryingtostaypositive #gettinghealthy (at Orcutt, California) https://www.instagram.com/p/B7Pgkx4hlCB/?igshid=1fggz3p8p2lbj
#rarediseaseday2019 is coming up! Let’s help support groups like @nord_rare @hlthevent @ignsorg @idfcommunity @info4pi to help spread awareness getup and get out there. Don’t forget to donate plasma #donateplasma #alsawareness and many more #raredisease let’s walk and unifd #cvidawareness #piawarensss https://www.instagram.com/p/B4MMvbSAVRd/?igshid=43i43z01zo0l
My life with #cvid. Now I know why I make all this dark haunting music!#cvidawareness #cvidlife #dj #producer #dnb #dnbnation #raredisease #vampire (at Sin City) https://www.instagram.com/p/B1XCt2ZAn_J/?igshid=1u9p4cvhb0vqr
The exhausted look. Good night fellow zebras #cvid #cvidlife #cvidawareness #mycvidlife @mycvidlife hung out with my #family #subcig #imsleeby https://www.instagram.com/p/B1QNZghAd8E/?igshid=1xyl7q5ixmf1o
My super power today is not itching the rash I have right now that I think looks like chicken pox, others say reaction to scig, others say possible heat... all I know is taking photos keeps both hands occupied from itching. Whats your autoimmune super power? #superpower #autoimmunedisease #zebrastrong #sjogrenssyndrome #cvidawareness I also was nominated for the #WEGOHealthAwards its pretty awesome how many of us on here have been nominated. Just shows how powerful word of mouth and raising awareness is on our #immunedeficiency let’s keep spreading the word & show we are bigger than this! Together we are strong #wearestrong #keepfighting #primaryimmunodeficiency https://www.instagram.com/p/Bz6HvfZATFm/?igshid=wxhfxspcj6r2
Oh boy I could not sleep last night but my pups kept me company. I think I’m just over tired & just need to hangout with the pups. I just need to remind myself it’s okay to just lie in bed once and awhile and just take a time out. How do you all deal with exhaustion days like these & want to still get things done? #mycvidlife #insomniaproblems #cvidawareness #raredisease #speakup #onedayatatime #relaxtionday #sjogrenssyndrome #ehlersdanlossyndrome #ehlersdanlos #autoimmunedisease #scig #infusion #immunoglobulin #immunedeficiency #lifeinabubble @mycvidlife https://www.instagram.com/p/BzuUqMLAZrQ/?igshid=34yf0d8qxtjx
Post infusion day in a crowd!!! Woot woot! I can do it. @mycvidlife #mycvidlife #cvidawareness #hypogamaglobanemia #ehlersdanlossyndrome I feel it in the hips #scig your plasma is what makes me able to do this #donateplasma #plasmasaveslives #sjogrenssyndrome #ax2019 #vogmask #vogmask_usa #anime #animeexpo (at Anime Expo) https://www.instagram.com/p/BzoH2gQg6Ft/?igshid=11kybciunxlxm
