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More reasons to #BanBPSD
More reasons to #BanBPSD
An article published in April 2019 Language paradigms when behaviour changes with dementia: #BanBPSD, rather ironically helps explain to me why we need to ban the contruct known as the Behavioural and Psychological Symptoms of Dementia (BPSD), and not just change the name. I’m doubtful that was the intention of the authors…
Over the last few years, many people in academia and in clinical…
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It’s always too soon to give up...
It’s always too soon to give up…
Once again, I have committed to post a daily blog in September, my feeble attempt at a contribution to Dementia Awareness Month, even though I am under no illusions of the value of doing so. Todays is about not giving up.
Those of you who have read my blogs this month will know I have been feeling a significant level of frustration about the last 25 + years of advocacy. The reason why is that…
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Risk reduction campaigns increasing stigma
Risk reduction campaigns increasing stigma
Following on from a recent blog about Dementia Risk Reduction, I received the comment below, which is being highlighted today, as this is such an important issue. I understand the necessity from a personal and public health strategy perpective for us to engage in risk reduction strategies.
I also understand that we humans don’t always live healthy lives, until something goes wrong with out bodies…
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Dementia Advocacy: a waste of time?
Dementia Advocacy: a waste of time?
For Dementia Awareness Month 2020, I’ve been publishing a blog every day, and trying to cover a number of different topics. Some are probably quite contentious, but I do believe, need a serious conversation.
The status quo in advocacy is driving me a little crazy…
Sadly, I am well aware my daily blogging is unlikely to make a difference, but it at least makes me feel like I’m doing…
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Restraint: is it still ok?
Restraint: is it still ok?
Image source: Kate Swaffer This photo was taken at the World Health Assembly, 2017 in Geneva, Switzerland.
Yesterday Ms. Ita Buttrose, the current Chair of the ABC in Australia, and an Ambassador and a past President of Dementia Australia gave a key note presentation at a Symposium hosted by DA.
In the Q&A after her speech, she responded to one mildly defensive comment that there are ‘good…
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Rejecting care?
“Dementia care is caring for people
Who often do not know they need care,
And don’t want to be in care;
No wonder they may become angry and upset.”
Author: Kate Swaffer ©
Swaffer, K. (2016). “What the hell happened to my brain?: Living Beyond Dementia”, Jessica Kingsley Publishers, London, p 239.
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Our 5-star Nursing Home Experience, by Susan Troyer
Our 5-star Nursing Home Experience, by Susan Troyer
Image source: Susan Troyer
It is day 1 (in Australia) of World Alzheimer’s Month, which many of us prefer to call Dementia Awareness Month #DAM2020 to help prevent people with a dementia other than Alzheimer’s Disease (AD) feel excluded by the campaign. It’s been a long haul emotionally and physically lately, with many personal stresses, and a recent major IT issue with DAI, taking up too much…
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