ARE DISSABLED PEOPLE LAZY? COULD REALLY DO BETTER IF THEY TRIED HARDER? This is an example of an average bad week, like 6/10 bad on mental health and 5/10 on the physical level. Oh yea it gets so much worst! Read this and tell me how I could have improved.
MAY 2023
Sat 29.04.23
-Asthma bad all night. I coughed myself awake so often I didn't get any deep sleep.
-Fibromyalgia not happy about this, and is flaring up on its way to STOPPING FLARING up instead! 🤬 Joy! So now going to pee has extra general pain added to it.
- Allergies & Sinus bad. My nose runs non stop. Used 1/2 roll of toilet paper blowing my nose just today. And no, I don't like waisting things. Throwing meds at it.
-Managed to work with my carer, sorting paperwork. I can't help with much else anymore. I don't have the hand strength to cut a carrot. That's annoying as taking away from my autonomy.
Sun 30.04.23
- Allergies & Sinus still bad with non stop daily headaches, with migraine sometimes.
-Fibromyralgia flare. Pain feels like I feel down badement cement stairs or when I had major surgery on day 3 with 5 days hospital stay. I'm in too much pain to eat. Exhaustion worst than Covid & Pneumonia!
-Asthma bad. I have to rest for 1 minute every 10-15 meters I walk. Going to the loo takes 5 breaks.
- Urinary incontinence dissability related not happy about so many breaks to get TO the loo. I need buy more trousers! (I used 3 in one day twice this week)
- I'm in so much exhaustion & pain I can't even face watching TV. Strong painkillers increased. I'm not happy. I was hoping to decrease them this week!
Mon 01.05.23
-Migraine.
-Sinus inflamed for past 4 weeks. Related to but not only cause of migraine. I'm a migraine sufferer.
-Fibromyalgia medium flare. Hands hurt as well as eveywere else. A plate is heavy to lift. I can't stab potatoes to zap them in microwave by myself.
-Hayfever slightly improving.
-If I didn't have a carer coming to help me with a wash, I don't know how I would cope.She helped more today. She's so nice. People don't appreciate them enough.
-Concerned how I'll make hospital appointment of Thursday. And got builders in tomorrow.
Tuesday 02.05.23
-Migraine at night.
-All body pain bad. Been worst before though.
-Builders poped in to say they'll be back tomorrow. And no neither owner nor estate agents told them about all the work needing doing.
- This is in fact my comparativly, the "best day" to date. I can't sit in a chair re pain. And I have a high pain threshold. Had major surgery and got up by myself the next day when everyone else did on the 3rd day with help. Nurses said it was shocking to see me trot - carefully - about.
- Hospital appointment of tomorrow changed for latter on. It's not a vital one.
-District Nurse popped in to assess if I need to worry re swealing in legs. I'll have to go to the specialist clinic after all.
-Blood Pressure still high & Pulse going nuts. Say hi to all types of allergies as a possible cause! I take the strongest anti histamin, plus 6 over the counter allergy tablets daily. Yep, the specialist doctors advised that. It stop skin for literally falling off and other horror stories!
Wed 03.05.23
-Vomited blood all night (5hrs of hurling on off) from ulcer, blood clots included! Yuck! 3rd time in 1 month.
-Day Migraine following as haven't been able to drink much
-Im past normal exhausted as part of Fibromyalgia. It feels like I did a 14hr shift and haven't slep the next 2 nights. (Yes, I've done that in the past. Joy of nursing & midwifery whilst having dissabilities)
- Spoke to GP, meds increased. I don't want another endoscopy. Don't see what else it will tell us. It's costly to the NHS, I'm going to be in so much pain for at least 2 weeks after due to dissability, not the test. Urinary incontinence will be a pain. I'm not even for resuscitation (DNR) anyways.
-Not hungry. Disordered eating means it will kick in if I can't eat at all today. Gods even cake don't sound appealing!
- Builders back. Same thing, back tomorrow instead. But now they got the list of job.
-District Nurse decided I need compression stockings! My severe eczema might not like the extra heat in summer! & Scratchy material.
-Migraine afternoon - nightime.
-Did eat eventually. Yea me!
Thursday 04.05.23
-Food helped with migraine & dissorted eating.
- Pain and extreme exhaustion same. I can't hold a plate of food.
- Severe anxiety started in afternoon after flat owner demanding I get the garden clean that night. Message was passed to me by builder at around 4.40pm. to be done by tomorrow morning. Oh yea, I'm dissabled with poor balance, walks some 15-20 meter with 2 stick, uses wheelchair otherwise. And it would get dark even if I miraculously find someone for, ... work that's not urgent! And oh yes, there's no place to eat at the kitchen table due to building work. Like that's not a priority after builders leave rather than garden. Also. Thunder and rain so bad, I though thunder had struck nearby.
-Complex Post Traumatic Stress Disorder (C-PTSD) few times last night (originates from past child abuse) but attacks due to the way the flat owner and estates agent treats me.
Friday 05.05.23
-Irritable Bowel Syndrome (IBS) exacerbated since around 2am started with the stress.
- Headaches back
- Severe anxiety rising progressively
- C-PTSD flash back early morning. Good thing I know how to manage it.
- I ate with carer, yea! Well she made me eat.
Saturday 06.05.23
-Anxiety still high
-C-PTSD same high during day, not typical of abuse. Definitely flat owner & Estates Agent related.
Sunday 07.05.23
- Actively managing the mental health side of things.
- Bad Heaches day time
- Friend brought me yummy KFC. Could only eat a tiny bit. Oh great, that's Dissordered Eating not happy with all the stress!
- Migrainy headach lasted 2-3 hrs. Resolved with management.
-Asthma attack in evening for over 2hrs. Was so rough couldn't do lung capacity measurement until finally calmed down.
- I won't be able to finish my KFC now. I'm pissed off. I'm so tired of juggling several deseases. It wouldn't be so bad of people acted like human being.
So. Do you still think I'm leisurely lying around having a relaxing time as a dissabled person?
Did you realise that it takes managing one thing after another everyday?
So everyone can do better of they "really wanted"? I really wanted to not loose my mortgage and dog. It's my dog I missed the most, not even one of my things. From a Midwife I became homeless. From working 16hrs or work followed by Union Rep work (IE talking to staff, not official meetings before you quote the law) I'm now not able to eat independently at times, or wash alone now. I'm still acting? Have a good, lazy life? You want to swap?