#eaglesyndrome

[thecpdiary]

Eagle Syndrome Difficulties

I try not to complain too much, but with Eagle Syndrome, it's getting to the point where my tolerance of my pain is running out. I am really struggling to work through the pain barriers that I get to deal with every day.

My symptoms started with a swollen mouth ligament, two months after losing my twin, through stress watching my twin's health decline.

Acupuncture

My current treatment is acupuncture to try to bring some relief. Having now been diagnosed by a maxillofacial specialist and having acupuncture treatment and asked the question, my swollen ligament and teeth issue could well be linked to Eagle Syndrome, as this can cause inflammation locally. But those symptoms could also tie in with TMJ?

I am due back at the hospital in a couple of weeks to see my maxillofacial specialist. The ligament and teeth issue started around the same time as Eagle Syndrome. 

Eagle Syndrome Difficulties My difficulties with Eagle Syndrome is the pain triggers, and not knowing when the pain will strike. There is literally no warning. I have activated trigger points, including muscular dysfunction and nerve sensitivity.

Along with ear pain, other symptoms include difficulty swallowing; head pressure, ear pressure, headaches, neuralgia type symptoms also, pressure behind the eyes, watering eyes, sensitive to light and noise, general malaise and generally feeling unwell. I'm more anxious than usual and scared. Not knowing when the pain strikes is scary. The condition is debilitating.

I've currently had to stop exercising. The cold weather seems to have an affect on my triggers. Putting make-up on, even washing my face is difficult. I go to bed with pain and wake up with pain. I have no life, but I am trying to work on ways to get myself better.

For more inspirational, life-changing blogs, please check out my site https://www.thecpdiary.com

[thecpdiary]

Eagle Syndrome and a Swollen Ligament

I'm struggling under the weight of Eagle Syndrome diagnosis. I've also got problems with a jaw joint ligament issue resulting in an issue with my back teeth.

You know that feeling when you’ve had an anaesthetic and you’re waiting for that to reduce, but while you’re trying to eat you’re eating on your back teeth, while your gum's still swollen. That’s what I deal with full time.

Living in my own hell

I’ve gone from losing my twin to living in my own version of hell. No one expects to lose their twin and then have to live in continual pain. Now I'm struggling with headaches, neuralgia and earache and that creates brain fog, which doesn’t help with writing. I don't know whether the pain is coming from the problem with the styloid process, the styloid ligament, or the mouth ligament. My gut's going with the ligament, but it could be coming from both.

Eagle Syndrome and a swollen mouth ligament

So, I have Eagle Syndrome, but I also have a swollen jaw joint ligament problem, and those issues are unrelated. The swollen ligament is related to the problems with my back teeth. My ear pain could be Eagle Syndrome/and the swollen jaw ligament. The pain is on the left side and it seems to be coming from the swollen ligament, but ear pain is also synonymous with Eagle Syndrome. The hard part is resting it and making sure I avoid the ligament. Hard to do when I eat, talk and swallow.

Wikipedia highlights the condition but doesn’t cite the issue with the swollen ligament and the back teeth as being symptoms. The throbbing pain seems to be coming from the swollen ligament. Eagle Syndrome can also present with pain. The hard part is resting the ligament.

Night times

Night times are the worse. I start sleeping up in bed, and inevitably end up sleeping down the bed on my face and that causes pain in my jaw when I wake up. Today I thought I'd try a cold gel press to see if that helps elevate some of my headache and neuralgia pain and so far, it works better than the hot compress.

I've had to reinvent my eating, so I eat on my non-affected side. I need to continue to avoid the swollen jaw ligament. I spend my life trying to work around my health and that’s not easy. My mental health is continually up and down.

Over the last few weeks, I have been in flight and fight mode, trying to work things out with next to no help from the professionals.

For more inspirational, lifestyle blogs, please check out my site https://www,thecpdiary.com

[bensfriends-blog]

Thanks!!

a member from Eagle Syndrome - Online Support Group

[bensfriends-blog]

Hi! Thanks for the welcome. I am hoping to making some good connections and help fight this!

a member from Eagle Syndrome - Online Support Group

[bensfriends-blog]

Thanks for the welcome. :-)

a member from Eagle Syndrome - Online Support Group

[bensfriends-blog]

Thank you so much for the kind welcome. I am so thankful for everyone on this site. I have suffered for 25 years and was just diagnosed earlier this week, completely by accident. I feel fortunate that i finally have a diagnosis, but am scared to death of what I'm facing. I'm not very tech savvy, but will learn my way around the site. I have already learned so much from just reading the comments on this site and am sure we will all learn from each other. So happy to know I'm not alone. Thank you!!