#eds3

[wordsarereallyhard]

Bipedalism was a mistake.

[queenlokibeth]

Let's talk about mobilty issues! As someone with a condition/rare illness/"thing" that can be considered an invisible disability, i tend to look fully abled. I have good days, meh days, bad days, horrible days. Sometimes it's longer than a day, like when i've gotten injured (however many times you think that has happened, triple it, at least) and i get stuck in a cast, crutches, wheelchair, whatever.

I get to see both worlds, so when i'm acting in a "functional" way, when it's a good day, and i mention the lack of a ramp somewhere, or "hey i dont think that this is very accesible" i get stares from abled people, not all bad, the majority probably don't mean any harm, but their confusion is in "why did you notice that", "how would you know", "oh i've never thought about that".

And that's the issue. It shouldn't have to take a person to go through the ordeal of not being able to navigate your every-day space for them to be a BIT more aware. When you are disabled, have an injury, have any sort of mobility issue, i'd say that 90% of the pain, annoyance and tediousness that you might experience has to do with how others treat you and how welcoming or unwelcoming places physically are to you, not the condition itself.

Why am i writing this? Because yesterday i was coming back into my building and through the glass i saw a guy fumbling with his crutches trying to pull the door open. There is one of those buttons thst you press to get the door open for wheelchairs on the inside... but it's broken. When i saw him i immediately pressed the button on the outside so that the door would open. I didn't open it myself on one hand so that I wouldn't be an obstacle as he walked out, but also because those doors are so heavy that they fuck up my shoulders whenever i try to open them manually. I stood to the side to give him space to move and practically rushed out and went "thankyouthankyouthankyou im so sorry" and i was like hey don't apologise take your time, don't worry.

He was thankful, embarrassed, and apologetic. Whenever i'm physically able to, i always go out of my way to help people struggling with their mobility devices and stuff (you know, in a respectful way, asking, and not grabbing their shit without permision). The reaction is always the same, and one that i have also had. People rush you, let doors slam in your face, make invasive comments, leave you behind if you're in a group, and if they try to "help", more often than not it's to satisfy their own curiosity.

When i help someone they probably think that i'm just some random abled person who knew what to do, and i don't mind that. When i have been in those situations i have NEVER received help from an abled person who wasn't my dad or a medical professional.

What i'm telling you all is that, if you are a physically abled person, please try to be actively mindful about these things. You don't have to do anything big, it quite literally is the just the little things. Don't be overbearing or condescending treating people with disabilities as if we were useless or weird (i WILL deck you) but that doesn't mean that you should basically pretend that we're on the same playing field.

If you see someone with crutches, offer to open the door. If you see someone in a wheelchair in a crowded place, try to clear up the path ahead by asking people to move aside for a bit. If you see someone with some sort of splint or brace on their hands trying grab or open something without success, politely offer to help. AND, that's for people you don't know. For your friends, be even more considerate. Don't make plans to go play footie or go on a rollercoaster when you know you friend can't do that.

Just, please be aware.

[wordsarereallyhard]

I hate being physically in too much pain to write.

[wordsarereallyhard]

Not to whine about my disabilities and accommodations but real cute how using zoom and Skype and paid sick leave and plastic straws weren’t reasonable accommodations until abled people wanted them....

[daniel-oneiroi]

So, another self promo, but I’m going to need your help with this one! I am finally accepting that the EDS-3 (an autoimmune disorder that is destroying my joints) is ... drastically limiting my ability to do stuff I like to do, like beading and jewellery-making. I also cannot keep going up and down the stairs to my second-floor apartment, and apartments on the bottom floor are more expensive for the same square footage. Falling on the stairs is just no fun at all. As such, I am majorly downsizing so that in a few months, I can hopefully make enough money to move. I need to find a more accommodating apartment elsewhere, in a part of town that is cheaper, but that comes with paying first and last month’s rent, security deposit, application fee, and pet deposit. It is exactly that which kept me from moving to begin with! But now that my hips subluxate and my ankles are completely destabilized, it’s a real risk to continue living here. I get no disability pension. Getting the lawyer and requisite paperwork with no money is slightly difficult. Moving needs to come first. How can you help? Spread the word about this sale! Reblog this, share the shop link, let anyone who is interested know. 

I am listing beads, vintage Japanese items, fabrics, jewellery, all sorts of stuff directly into my shop’s clearance section. Once my school exams are over with on Thursday, I can list even more!  I have boxes and boxes of beads, stacks of specialty papers, drawers of fabrics, and more just to start. EDS saps my energy pretty fast, so I will do as much as I can every day. My deadline is February, and that isn’t very far away. Thank you!

[daniel-oneiroi]

Hello! Still selling off a lot of items so that I can move. EDS3 is making things like stairs pretty difficult, so I need a place on the ground floor.

These komon kimono are $25 each + shipping anywhere. $9 in the USA.

The first has a very interesting texture, like high quality soft paper. The pine needles are in eggplant, paprika, ochre, and kelly green. Minimal staining found, a few small spots here and there, but still very wearable thanks to the busy pattern and bright colours.

The second has a white base with red net-like geometric, with clusters of tiny fans. Lining is yellowing and needs replacing, but bottom lining is okay. Some tiny spots here or there, but because of how busy the pattern is, they aren't very noticeable. 

The third reminds me of SALZ Kimono. >D Yellow coin-like pattern on deep black-grey. This is likely a quite old kimono. It's short and narrow, like for a teenager, with some fabric hidden up in the sleeves. Cotton lining except the grey synthetic bottom portion. Some minor damage to the collar, and a few small pinholes that I've spotted. They are pretty well camouflaged.

The fourth unfortunately is likely best used for fabric. I think it is a silk/synthetic exterior, or a really high quality synthetic, w synth lining. It is woven with stream patterns, with grey dot wave patterns, overlaid with maiougi fans featuring peonies and other flowers. Tiny gold details. Unfortunately, the chest has some staining. I haven't attempted to remove it.

(sorry, my phone shows photos much brighter than they are and I had to fix all of them as best as possible... this apartment has NO natural lighting!) You can pay me through Paypal. I have EXCELLENT 5-star ratings on Ebay and Etsy, under PerthroSupplies.etsy.com I ship quickly, anywhere in the world!

[scottyskindaintoit]

Sometimes I have a really long string of good days and kind of forget that I'm disabled? Then fuckin everything comes crashing down and I can't sleep cuz pain, can't move cuz pain, can't eat cuz nausea. . . Nearly put my wrist out of place just leaning on my cane for a couple of minutes. Absolute nonsense, I'm furious with my meatsuit.

[lozownthoughtsonlife]

I went out on a really enjoyable run this evening. It was in a relatively populated area as I don’t like running too much in the dark in a city. For some reason i felt safer at home running in a village. Anyway i am side tracking now, I had an enlightening experience whilst on my run. I ran past a group of teenagers twice and they shouted abuse my way both times. Now i am used to comments, I’d like to think i have a relatively thick skin so i just carried on running and forgot about it but it always effects you a little bit. It got me thinking though about the amount of people who would have started running or exercising outdoors and given up due to someone shouting something or passing a comment. This must be really hard especially if you are disabled or need to alter your lifestyle and want to run. Imagine how many people are out there sat at home too scared to go outside because they are scared of comments like; oi look at fatty running, or laughing as you pass taking the mickey out of your running style / technique or what you are wearing. It is so hard to keep positive and keep going when things like this happen. I just put my head down, keep listening to my music or book and keep running on I just think of how far I have come and how I will feel once I have completed my half marathon this year. I also kind of feel sorry for the ones making the comments, why do they feel like they have to make them? Whats going on in their life and in their head for them to feel that it is necessary to make a comment. I doubt they realise you are running through or passed your pain #running #healthandfitness #halfmarathontraining #hms #eds3 #painfreedreaming #health #fitness #strength #hypermobility #invisiblezebra #invisibledisability #zebrastrong #zebby https://www.instagram.com/p/Bs6YVSen2Ag/?utm_source=ig_tumblr_share&igshid=13dhp6cnsjxt5