#fibro polls

[fibromyalgicaf]

On my recent poll about number of medications, I see a lot of people saying they forget to take their meds so now I'm curious why (no judgement)...

Why do you miss days/doses? (What gets in the way of you taking your meds?)

I just forget

I get distracted

My life is too busy

Supply issues (doctor's/pharmacy's fault)

I don't know where I put them

Fatigue makes me sleep through the dose time

Other symptoms get in the way

All/multiple of the above

None of the above

Other (see tags/replies)

Voting ended onMar 4, 2025

[fibromyalgicaf]

I'm curious who I've got in my followers so...

If you follow me, what category do you fit into?

I have fibromyalgia (with or without other conditions/disabilities)

I have (an)other condition(s)/disability

I don't have fibro or any other condition/disability but I love someone who does

I don't have fibro or other condition/disability but I wanted to follow anyway

other / none of the above

show results

Voting ended onOct 18, 2025

[fibromyalgicaf]

Someone told me about a pain relief ice cream being developed in the Netherlands! Unfortunately it seems to be either a hoax or a one-off stunt, but...

Would you try paracetamol-infused ice cream?

definitely not

maybe

I would try it

if it's lactose free as well, I'm in

make it with cannabis and I'm sold

morphine ice cream?

see results

Voting ended onOct 31, 2025

[fibromyalgicaf]

✨ The fibro fairy is back again to gift you a magical companion; what do you pick? ✨

Tiny dragon to keep you warm (can also heat up your tea or soup in a pinch).

Pixie that tidies up and organises

Dryad that sings you to sleep (no more insomnia!)

The laundry imp

Gremlin that washes the dishes (a little grumpy, but very efficient).

Fluffy jackalope that reduces anxiety through cuddles

Gnome to help with the gardening

Selkie that gives soothing massages

show me the answers

Voting ended onDec 18, 2024

[fibromyalgicaf]

Would a fibromyalgia glossary post be interesting or useful to anyone? I got part way into making one and then wasn't sure if it would actually be of interest...

Would a fibromyalgia glossary be interesting or useful to you?

Yes

maybe

no

not sure

see results

Voting ended onNov 5, 2025

[fibromyalgicaf]

Question for those of you with fibromyalgia...

Do you get overwhelmed by sensory input?

I do but because of something other than fibro

yes – by sound(s)

yes – by lights and/or other visual

yes – by touch / tactile sensation

yes – by smell(s)

yes – by taste(s)

yes – by multiple of the above

yes – by all 5

not at all

nuance / other?

see answers / I don't have fibro

Voting ended onAug 16, 2025

Feel free to share details in the comments/reblogs ✌️

[fibromyalgicaf]

Question for those of you with chronic pain... I'm curious how much your pain varies; do you experience the full 0 to 10 spectrum (over the course of a week or a month) or does it generally only change by a few points? These days, I would say my pain is often a 5 or 6 out of 10 but it can be anywhere between 3 and 10.

How much does your pain vary?

I get the full spectrum (0 to 10)

It varies by several points (e.g. moves between 2 & 8, or between 4 & 9)

It only changes slightly (e.g. only moves between 4 & 6)

other/nuance

I don't have chronic pain / show answers

Voting ended onFeb 28, 2025

[fibromyalgicaf]

People with chronic illnesses/disabilities, what is your fave self-care item or activity?

bath/spa/shower

manicure/pedicure

chocolate/confectionery/dessert

savoury snacks/treats

journalling

art/crafts

music

animals/getting out in nature

reading

multiple of the above

something else

I'm not disabled / show me the results

Voting ended onDec 12, 2024