Just a very quick post asking for your help with a petition that is very close to our hearts.
A drug has been developed that will in effect almost 'switch off' CF in those with a particular gene in CF. (the G551D gene or 'Celtic' Gene - due to its prevalence in Scotland). This medicine could prevent further irreversible organ damage being done. Despite this medicine being available in the USA since January of this year and having been granted a European license in July, it is still not available for those in the UK & Ireland who desperately need it! Due to costs, administrative delays and the system we have here, the prescribing of these tablets may not be for some further time to come. A Scottish Parliament petition has been created asking for immediate further funding to be put in place to allow the prescribing of this life saving medicine NOW!! Since it is 'immediate' funding that I have asked for, it means that we only have a matter of weeks to get as many signatures as possible!! Please share this with as many of your friends, family and work colleagues as you can. It can be shared and signed worldwide. This is a very cruel situation for the very people that this drug has been developed to help.