#Repost @meactnet ・・・ And now for the bad news and CALL TO ACTION: The charter for CFSAC, the Chronic Fatigue Syndrome Advisory Committee was dissolved without notice on September 5th by HHS (the U.S. Department of Health and Human Services). This action eliminates the committee that gave patients and activists a platform to provide advice and recommendations to the U.S Secretary of Health and Human Services on issues related to Myalgic Encephalomyelitis (ME). This injudicious dismissal of one of the longest-running public meeting platforms between patients and their government isn’t just worrying — it’s an insult. It shows a breathtaking degree of disrespect, and a lack of understanding of what patients and stakeholders have sacrificed and contributed over the years. Show up virtually on September 14th! Take a photo of yourself within the theme of “We will be Heard.” Suggestions: ⇹⇒ Stare defiantly into the camera and hold up a sign that says, “Hear ME Now HHS;” or “We will be heard;” or “We will not be silenced.” ⇹⇒ Write such words on your body. ⇹⇒ Cover your mouth with a bandana and write, “Do not silence M.E.” or “HHS will hear ME.”⇹⇒ If you have another photo idea, we love it! What is the message that you want to send to the HHS? Use the hashtag and get the word out! Post your photo to social media with the hashtag #HearMEnowHHS. Tag the HHS director using the twitter handle: @SecAzarCall and email HHS Secretary, Azar. Watch this space! We will provide you call and email details soon.Send your friends to D.C. Encourage all friends and allies in the DC area to protest on your behalf! Protest in person: Join the protest on Friday, September 14th, at 10 a.m eastern time, show up at HHS Headquarters in Washington, DC! Show HHS we will NOT be erased. Bring a prop that includes something along our theme of: “We will be heard.” “We will not be silenced.” For full details, go to News on meaction.net (link in the bio). #protest #solidarity #timeforunrest #pwme #mecfs #myalgicencephalomyelitis #advocacy #pwme https://www.instagram.com/p/Bne81JVBatn/?utm_source=ig_tumblr_share&igshid=sod6hexjrxbs