Sep 24, 2019
JOIN FIGHT! SHARE SHARE SHARE! #JOINHANDSFOREB #WEFIGHTEB #MARKYTHEROCK #THEWORSTDISEASEYOUVENEVERHEARDOF @WEFIGHTEB @CAUSETHEWAVETOHEALEB @EBMRF @EBRESEARCH https://www.instagram.com/p/B2zLhU0HJO1/?igshid=lm5rqlf6v04s
seen from China
seen from Türkiye
seen from United States
seen from Hungary
seen from Malaysia
seen from Türkiye
seen from Türkiye
seen from Hungary
seen from United States
seen from Japan
seen from New Zealand
seen from United Kingdom
seen from China
seen from Türkiye
seen from China
seen from Saudi Arabia
seen from United States
seen from Singapore
seen from Australia
seen from Yemen
JOIN FIGHT! SHARE SHARE SHARE! #JOINHANDSFOREB #WEFIGHTEB #MARKYTHEROCK #THEWORSTDISEASEYOUVENEVERHEARDOF @WEFIGHTEB @CAUSETHEWAVETOHEALEB @EBMRF @EBRESEARCH https://www.instagram.com/p/B2zLhU0HJO1/?igshid=lm5rqlf6v04s
I know it may seem as if I am always positive and upbeat and constantly happy but the reality is every night I wake up in a sweat not once but several times a night because I haven't heard marky call out for me so I literally hold my breath as I turn the handle on his door until I put my hand on his chest and feel it go up and down and only than do I let myself breath. And its repeated every morning.... this is the reality of having already loosing one child to this horrific disease... I have depression..its just not a depression that can be handled with medication.... special needs moms are a different breed... not by choice but by circumstance... I will never stop fighting for my child..... so when you see me smiling ...see me laughing...see me with all my positivity ..its because God has given me one more day with my child..one more day of loving him..one more day of memories forever imprinted on my heart and mind.... #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong #markytherock https://www.instagram.com/p/B2y5048n0Ty/?igshid=9j6h8avvmukh
Excited to share the latest addition to my #etsy shop: Marky The Rock B3001 - Unisex French Terry Crew ! Fall is here y'all! show you're support and join the fight to find a cure! https://etsy.me/2kJ1MtI #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #markystrong #joinhandsforeb #weneedacure #brotherstrust https://www.instagram.com/p/B2y186UHbai/?igshid=5zoki567anop
One of my favorite pictures of Marky and daddy @markthehammer1 ....Markys still layed up with torn corneas...which means days in bed in the dark with lubricant over the eyes for healing.... but all he's worried about is his brothers birthday and showing his dog in Oklahoma..... he never worries about himself always others.... my #superhero #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #adventuresofmarkyandcephas #abkcbullies https://www.instagram.com/p/B2o_2vSnux2/?igshid=yluawx4uwa54
I told Marky this morning..My love you are so amazing still smiling after waking up in so much pain from your scratched cornea..and said " Mamma at least I woke up".... #lovewhatmatters #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebawareness #markystrong #specialneedsmom #momofahero https://www.instagram.com/p/B2mTKLfn_QJ/?igshid=1bu2zfgthkigd
So were in the beginnings of our morning routine and Marky asks " momma since I'm 19 now can I please try and take my blankets off and turn over on my own like A big boy?" And as hard as it Is I'm trying to honor that request..eventhough I hear him struggling and making noises of pain. I started getting up and he saw me and said " no momma I'm doing it ..it just hurts but I still want to keep trying "! 😢 my heart....... my strong boy...forever my baby.... if only we all had his perseverance.... #joinhandsforeb #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #beinspired #godislove #grateful #cureeb #weneedacure #markythehero #markystrong https://www.instagram.com/p/B2jmV8EHiuO/?igshid=15w9i1gj9zeci
Good morning... #joinhandsforeb #markystrong #markytherock #theworstdiseaseyouveneverheardof #godislove #ebawareness #ebsucks #weneedacure #wefighteb https://www.instagram.com/p/B2g6KKhnG5-/?igshid=yuavzf2b6hp3
Loved giving this to my dad today been waiting almost two weeks to see his face❤❤❤ huge grateful shout out to @johnny_inspired @austindillon3 and @pswan33 ....... not enough thanks in the world.... #austindillon #NASCAR #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness https://www.instagram.com/p/B2aaX5kH1zr/?igshid=cya3na1829cp