Apr 30, 2017
hey! i just wanted to say, in response to the eds height anon; i'm 5'4 with p severe eds and i know a fair few people with it as well, and all except one are taller than me. in all my years of research i've never seen anything relating to height. my advice would be try see some other rheumatologists, because in my experience even if one seems like they'll be good and knowledgeable there's always the potential they'll be terrible. it's always worth getting a second opinion. hope this helps a bit!
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