#mpsii

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We are thrilled to announce that our most recent raffle of fan-donated @johnmayer merch brought in a whopping $1,060.00 for @isaacfoundation ‘s MPS II (Hunter Syndrome) Fund!!!  

There is so much to tell you about, that has happened within The JM Fan Street Team since we last blogged.  Unfortunately, this writer’s hand surgery last month has precluded any serious blogging.  So here are the highlights:

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First, the raffle...  We have to apologize that we had to limit updates to being done briefly on Instagram, to the exclusion of our Tumblr, Twitter, and Facebook audiences.  Again... the hand surgery thing (which I’m aggravating right now, so trying hard not to be my verbose self).  If you don’t follow us on Instagram, please come on over and find us... we go by “jmfanstreetteam” over there.  We try like heck to keep everyone updated, but alas we are mere humans behind this well-polished Tumblr screen.

Once our raffle gained momentum, super-JM fan Mark Rankin of Florida issued the second of his amazing offer-slash-challenges:  he said that if we could get our raffle entries up to $800, he would add another $200 and bump it up to an even $1,000!  And this was AFTER he’d already contributed $260 to the raffle coffers!!

Well, if you know anything about how amazing John Mayer fans are, you know that they do not take such challenges lightly, especially when it’s for MPS kids!!  Our team leadership issued a challenge on top of his:  that if we did hit $1,000, we would add two more merch packages to our raffle, and choose THREE winners instead of just ONE... thus clearing out every single thing that has been donated to us recently.

We did, and he did, and then we did again.  Our grand prize winner of the TSFE Meet and Greet tour poster and JM-autographed “Emoji of a Wave” lyrics was Stacy W. of Texas.  The winner of Package #2, two VIP lanyards from Dead & Company (2016) and TSFE (2017) tours, was Sarah W. of Wales, United Kingdom.  And the winner of Package #3, JM stationery and other mementoes, was Kendra B. of Alabama.  Congratulations to all of you, and thank you to everyone who entered ~ especially Mark, for the added incentives!

The raffle packages were all mailed out on Monday, and a donation of net proceeds was made to The Isaac Foundation’s MPS II Fund yesterday.  We donated $1,335 CAD via Trey Purcell’s “half-marathon” sponsorship page, bringing the total raised for MPS II by participants in the Scotiabank 5K Cross-Canada “Run For a Cure” to over $15,000 CAD!  

This contribution is one of the MOST significant ones we’ve made since we started this project in 2012, because the gene therapy which is believed to be a cure for MPS II / Hunter Syndrome is now at the stage where all that’s needed is money.  So every dollar that is donated now is potentially saving a child’s life... literally!!!

If you’d like to know more about this particular form of MPS, how it affects the children’s and families’ lives that it touches, and the promising gene therapy that’s close on the horizon, you can find info and videos at:

www.TreyPurcell.com www.ProjectAlive.org www.iBellieve.com (yes, that’s 2 L’s) www.HunterPatients.com www.BoyswithBiggerHearts.org www.HunterSyndromeResearch.org www.TheIsaacFoundation.com

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The money raised through this latest raffle brought the total that we, the JM Fan Street Team, have raised for The Isaac Foundation and MPS kids up to an incredible $8,572.12 USD!!!   Our next goal:  $10,000 USD by the close of 2017!!  Can we do it???

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It’s with great sadness that we report the loss of a valued member of the JM Family on June 29, 2017.  Our dear friend and fellow street teamer, Jessica Luttrell, lost her brief battle with cancer at the young age of 36.  Street teamers Chanda P. and Melissa C. took up a collection amongst the JM family, and Chanda also represented all of us at Jess’s memorial service in Tennessee last Thursday.  Her JM family sent a beautiful flower spray and also contributed over $500 toward her funeral expenses.  The heart of life is good, and once again JM fans have stepped up and showed what amazing souls they are.  Goodbye Jess, we will always miss you.

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On a happier note, our street teamer Irem O., in the beautiful country of Turkey, wed her beau Erdem this past Saturday, in a weekend-long celebration of love with their family and friends.  Irem was a stunning bride, in a gorgeous dress that looked like it was made just for her.  The couple was last reported honeymooning in Provence!!   Best wishes to them as they begin their life together.  Irem, your JMFST friends will have a little something coming to you when you return home.  

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Finally, we would be remiss if we didn’t tell you that our fearless leader, Andrew McFadyen, turned 40 last Friday.  Happy belated birthday to a man who does so much for so many in the MPS community!!  Send him a shout-out, if you haven’t already.

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That’s it~ wrapping this up, just as a big thunderstorm is rolling in overhead!  Until next time,

JMFST

P.S. Please see a description of our informal, worldwide fan group in the right margin of our page, as well as a complete legal disclaimer.  :)

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ANNOUNCING A RAFFLE TO BENEFIT “Team Trey” and @isaacfoundation ‘s MPS II Fund (Hunter Syndrome) - Random drawing is on July 8th!

The John Mayer Fan Street Team has received a donation of the items pictured above, from one of our street teamers.  It’s the swag she received as part of her Good Love / Meet & Greet / Front Row package for the Boston show on April 9th.  One lucky person is going to receive both the TSFE tour poster AND the “Emoji of a Wave” lyrics sheet with John’s original signature on it, in the raffle we’re announcing RIGHT NOW to benefit The Isaac Foundation!

Yesterday, a dedicated group of supporters ran in the Scotiabank 5K half-marathon despite scorching heat, and raised $13,891 for MPS II (Hunter Syndrome) research. 

The JMFST has decided to use this recent “JM swag” donation to add even more money to the total raised by friends of Trey Purcell, who is battling MPS II. The money raised by this raffle (net of shipping cost) will be sent to Team Trey and The Isaac Foundation’s MPS II Fund, and will add to the $7,500+ already raised by John Mayer fans!!!  

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RAFFLE DETAILS

Starting today, you can enter once a day for the next 12 days, for $5 USD per entry. 

This raffle is being conducted via PayPal only.  To enter, simply send $5 US dollars and you’ll automatically be entered.  No need to tell us what it’s for; we’ll know, as this is the only thing we are running at the moment.  Please use our email address [email protected], and mark it as “sending money to family or friends.”  If you don’t mark it that way, PayPal will deduct a “seller fee,” and we’ll have to send your entry money back to you, and ask you to resubmit it correctly. 

If you miss a day, you may send a “catch up donation” at any time, but you may not submit more than 12 entries per person, or $60 total.  We will allow you to also enter for a friend who doesn’t have PayPal, as long as you indicate when you send the $5 that it’s for someone else, and give us that person’s name in the PP “note” field. (Also okay to enter for multiple friends, but not more than 12 entries per person.)

This raffle is open to anyone worldwide, so please be sure that your entry comes in as US dollars (you can do that on PayPal).  Any entries that are short due to being sent incorrectly will be returned, and we’ll ask you to resubmit.  If any entries come in with excess, we will donate the extra $ to Team Trey and MPS II research.

We will conduct a random drawing on July 8th, and one winner will be announced that day.  The merch will be mailed in a sturdy poster tube.  Within the US, we will provide tracking; however, we are unable to track internationally. Please understand that international shipping involves some risk.  Although we’ve never had a shipment lost in transit, it is possible.  In the unlikely event that the merchandise does get lost, we are unable to offer cash refunds. Please understand that this is a charity fundraiser, and that your money has already been donated to help sick kids.  Everything that we bring in gets sent immediately to The Isaac Foundation.

OUR GOAL

Based on what we have raised with similar items in the past, we would like to set our goal for this raffle at $250.  That would be a beautiful thing, because it would put our total raised for The Isaac Foundation closer to $10,000... something we’re striving for this year!.  It would also be a very nice chunk of change to add to Team Trey’s $13,891 raised yesterday.

So let’s see if we can do it, folks!  GO!!!

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NOTE:  We are FANS of both John Mayer and The Isaac Foundation, and we are not formally affiliated with either.  All of the merchandise we raffle off has been donated by John Mayer’s amazing fans located all over the world, because they support and care about The Isaac Foundation and want to help find a cure for MPS.  We banded together in 2012 for this cause.  Please see our Full Disclaimer in the right margin of our page.

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The hardest part of being supporters of The Isaac Foundation is when we hear of the passing of an MPS child.

Today, Dany lost his battle with MPS II, aka Hunter Syndrome.

Our thoughts and prayers go out to the Colmenares family.

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With broken hearts we want to tell the world that today we lost our beautiful son Dany. He fought hard for us because he loves his family so very much. Dany left us with his beloved aunts and mom and dad at his side. Mommy and Daddy will forever love you. 

May 16 2011- February 9 2017