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I’m writing a blog
I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…
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Multiple Sclerosis Sucks
Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop…
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Multiple Sclerosis no rhyme or reason
Multiple Sclerosis no rhyme or reason
I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease.
A good example is when I was playing mahjong. I’ve had…
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Trying to stop gabapentin, lesson learned
Trying to stop gabapentin, lesson learned
Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society)
I’ve been taking this drug for years. I’ve had it in a wide range of dosages from 100mg to 600mg. Probably about 4 or more years ago my doctor…
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A horrible and humbling outing
A horrible and humbling outing
My first social outing since March I was having dinner at my mom and stepdad’s house. It was the first time I was seeing my mom since a quick drive by in the beginning of April. It was the first time I was seeing my sister and brother-in-law since February. We were all getting together to celebrate my daughter’s 21st birthday which is on Wednesday. We were having dinner outside. She has a…
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Sleep deprived
I had a rough night. I had a very upset stomach. It’s 10:00 in the morning and I already completed 8/12 standing.
Every part of my body aches but my stomach feels better. I haven’t slept and wasn’t able to fall back asleep. I was consoled the whole time by my little Zoey. Cuddled up next to me ❤️❤️.
MS doesn’t help without sleep. I will drag myself through the day. Good thing I have nowhere to…
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When transitioning to a wheelchair be sure to see an OT for evaluation I completely understand why I have the been in the wrong wheelchair all this time. I had a very different experience this morning in preparation for a new wheelchair.
Patient don’t get a say in treatment course with insurance
Patient don’t get a say in treatment course with insurance
After I spent hours on the phone getting my van taken care of, they finally came to tow it to a place on Long Island instead of New Jersey. I was mentally exhausted. As I am coming back into my condo the phone is ringing. It was my infusion place. The authorization for Rituxan isn’t going to be overnight and my infusion scheduled for Wednesday was canceled. All I could do was laugh.
One problem…
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