#nagersyndrome

[aromanticaries]

Love you, Jeff.💙💚💛💜

[debbiehepworthjorde-blog]

The Foundation for Nager and Miller Syndromes FNMS bi-annual conference was in Provo, Utah this year. Heather, Logan, and I had awonderful time seeing and spending time with families who face some of the same challenges that we face. We are reminded that we aren't the only ones who have health and social challenges. This helps all of us feel more empowered and optimistic so we can handle the many obstacles before us. We are so grateful for our FNMS family! We are grateful for all of you who donate to FNMS! If you haven't yet donated to this parent-run non-profit organization that makes it possible for children from all over the world who have Nager and Miller syndrome to get together bi-yearly, please go to their website and donate today! We all thank you! http://fnms.org/ — with Heather Madsen and Logan Madsen. Feel free to tag yourselves in this photo FNMS families!💓 . . . #nonprofit #millersyndrome #raresyndrome #raresyndromes #nagersyndrome #nagersyndromeawareness #fnms #disability #disabilityawareness #overcomingchallenges #overcomingobstacles #supportgroups #groupsupport #provoutah #provo #inspiring #donate #peoplesupport #supportpeople #bestfriends #familysupport https://www.instagram.com/p/BzrIDieFVTm/?igshid=15r30gzje41lp