We staged a remake of a sentimental photo of the first time we met Erica Perry, from New Zealand, in SLC. Erica has Rare Miller Syndrome like both my kids, Heather and Logan. Her family became the only other family world wide to have 2 kids with Miller Syndrome after her brother was born, also with Miller Syndrome, 3 years later. We had so much fun last week when their family visited us again 32 years later! Families supporting families at the Foundation for Nager and Miller syndromes, FNMS, conference in Provo this month! . . . #raresyndrome #raresyndromes #friends #sentimentalphoto #inspiring #livinglife #livinglifelikeanadult #livinglifetofullest #supportingfamilies #fnms #millersyndrome #love #loveislove #nonprofit #nonprofitorganization #gettingtogether #sharinglove #being #beinginthemoment #empowering #funtimes https://www.instagram.com/p/Bzy5rK2lLrl/?igshid=4gd4y8bcnmzq