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“I will be kind to my restless body.” — Megan Rhiannon
People sometimes mistakenly think that narcolepsy is the opposite of insomnia, when, in fact, people with narcolepsy can suffer from insomnia, too. Narcolepsy isn’t just a struggle to stay awake (though that’s part of it)—our brain have trouble regulating sleep/wake cycles, leaving us chronically sleep deprived whether we can fall asleep or not.
Gloomies card and printable stickers are by @petite-gloom .
the hypnagogic hallucinations and automatic behavior are getting worse. I just messaged my boss apologizing for missing a meeting, and she told me I was in the meeting and actively participated in the discussion. turns out I went to the meeting in my fucking sleep.
Excessive Daytime Sleepiness is such an understated, milquetoast, easily dismissed term for a debilitating fucking symptom I'll tell you what.
You know you have narcolepsy when you set 6 alarms for the morning just to ensure you actually wake up
Love that my body’s response to “hey there’s five things you need to get done today with major urgency” is 😱😴 like that’s not gonna just cause my body more stress and make it harder for me to get those five urgent tasks done
Does anyone else feel like they have to play up their symptoms a bit to be taken seriously? Like I work remote and when I have a sleep attack, I feel like I have to do something obvious like have bad spelling/grammar in my message about how I’m having a sleep attack. Like one or two might get in naturally cause I’m tired af, but I almost always see them and 80-90% of the time I’m aware enough to correct them.
I’ve been disbelieved enough throughout my life about being too tired to function that at this point that I feel like I have to do something to show that I’m too tired to function and it’s either that or fall asleep in a meeting I might not be awake long enough to make it to.
I have reached dizzy-tired but still can't fall asleep 😭
pray for me I’ve got a bunch of meetings tomorrow with only a couple of 10-15 minute breaks so I’m not gonna be able to take a proper nap 😭
