#narcolepsyuk

[energeticnarcoleptic]

Is your source of happiness sustainable? Not permanent, sustainable. It’s important to make sure you have a sustainable and healthy source of happiness. Whether that be making music, dancing, smashing a HIIT class or simply making the bed- these are all choices- we are in control of that element of happiness. However if you rely on others to make you happy or the approval of your boss, your partner or maybe your parents to make you happy this isn’t sustainable, yes it can go on and they can praise you everyday however looking for happiness outside of your control isn’t sustainable. You have to find happiness and joy on your own, that’s doesn’t means to say you have to do it on your own you have to be in control of that choice to do the thing you love rather than wait around for someone to tell you that you are doing well because that happiness doesn’t last forever then before you know it you are back searching for approval or reward and until someone else provides it for you, you won’t be happy. Remember that happiness doesn’t just mean smiling, happiness comes from the inside, you feel joy, laughter and a sense of fulfilment, you feel so happy that everything almost slots into place like a weight has been lifted of your shoulders. So if you think happiness is going to come knocking on your door or you are searching for it within someone else, don’t. Be brave, be daring and be courageous to go and try something new, try something different because you never know that might be the start of something new. I used to hate meeting new people and talking to strangers, I had an insecurity that they just won’t like me. I’m too shy, I’m too quiet, they might think I’m rude and I don’t want to come across like that so I just avoided those situations however as soon as I let go of those insecurities, not to say I went from being the quietest to the loudest, no I am still myself, I’m just not limiting my abilities to be successful and success for ME (we are all different) is how I perceive happiness- so I’ll go and get it! #energeticnarcoleptic #happiness #happy #motivation

[thesleepylife]

In this Blog I will be covering the subject of living life the Narcolepsy and Catalepsy , my diagnosis and more.....  

[energeticnarcoleptic]

No other medication comes close to how I feel after a fab workout, an awesome class or a super run 🤩 it leaves me with this feeling of absolute smiley-ness 😁 Sometimes I feel so far away from that feeling that I want to give up, sleep for the rest of the day and eat 7 bowls of Jordan’s! But when I have a scheduled class at the gym, there isn’t much more I can do apart from get up and do it. I can assure you the minute I start exercising this feeling switches up side down and only continues to grow through out the class 🕺🏼 So if you, like me, suffer from Narcolepsy and Cataplexy basically DON’T LET IT TAKE OVER!! We HAVE to be strong, I honestly know how hard it can- the other day I was paralysed on the sofa at 2pm while Frankee is walking all over me desperate to go for a walk! Oh and this is after I woke up to eating cheese slices in overnight oats. 🤢 I dreamt that I had got up and walked out the door so many times but I kept waking up to find my self still laying on the sofa unable to move 😡 But when I was able to move I MADE IT COUNT! Nadie is a bitch and you CANNOT let her win! #energeticnarcoleptic 😴 Wearing #penation @p.e.nation (of course) .

[energeticnarcoleptic]

Nadie came to visit last night while we were having dinner @georgeamsterdam - just the two of us until she pulled up a chair just after starters and hung around ALL BLOODY EVENING! 😡 I had taken Maikel out for dinner as a little treat but when Nadie made me dip my little chocolate treat onto the napkin as if it were mayo 🤔 it didn’t feel like much of a treat anymore. 😢 I was so annoyed and although last night was extremely hard and very frustrating Nadie should remember one very important thing- she’ll never win, she might fight me and take over but those times I feel so energetic and alive over ride those difficult moments and Narcolepsy will never take that away from me. P.S. Never a dull moment when I’m taken for dinner.... 😏#energeticnarcoleptic #narcolepsy .

[energeticnarcoleptic]

Monday 29th May - I ran my first 10k race since I was 19, the Vitality 10,000 in London. My aim was to get under 50 minutes and I came in just under 47minutes- 46 minutes 56 seconds. I was over the moon, it made all the tingly leg sensation, vomit inclinations and over heating/burning ears (bloody over head earphones!!) worth every second! 

I was pretty useless for the rest of the day, fell asleep walking to the train, tripped on a tile (for the record, the tile got in the way). I ate a whole packet of super scrummy salty nuts while stood in the middle of the kitchen snoozing... until my knees actually unlocked and the nuts and I fell all over the floor, what a waste! 

As I sat down for dinner I knew this was only going to go one way... snoozing while eating, trust me its actually not as hard as it looks!! However, this time I back tracked 22 years- bib, bottle, slurry words and no hand eye co-ordination at all, so much so I started to feed MY EYE!!! Yes, thats right, I poked my self in the eye with my fork. I bought my fork from my plate to my....EYE! Got it yet? I’ll say it once more- I PUT MY FORK TO MY EYE AS IF IT WAS MY MOUTH! Oh Jesus Belle!

But all these struggles were so worth it, as the rush of adrenaline I had when I crossed the finish line in London was incredible, I felt strong, I felt like a winner, a winner to my self, I'm never going to let Narcolepsy stop me doing these things because I CAN physically do it, I finished in the top 5% of women, so I'm no different, just need to sleep more often! 

 I love setting my self goals as it gives me something to look forward too and also a sense of achievement! Even if it is to walk a 5k or something like that, I strongly suggest you do it. You will feel great afterwards, I promise! Our bodies are made to move, made to sleep a little more than other but we are still made to move so get up and do something, its very cliche I know, but we have one life and we choose how to live it, don't waste your days, use them wisely, be healthy, be happy and be STRONG, mentally and physically! 

Belle x

[energeticnarcoleptic]

Feeling strong today, for the last few days I've been so tired, drained all day and falling asleep every single time I sit down. I was staring at my omelette last night like it was a really confusing math paper, dissecting it like it was something you dissect in biology at school. Then to get up and make dinner all again because I hadn't realised I had already eaten! Narcolepsy doesn't doesn't mean you fall asleep at the drop of a hat, oh no, my hallucinations sometimes are worse than the falling asleep its self. My Cataplexy sometimes catching me completely unaware like yesterday I was telling my mum the socks on the AGA were mine not Frosty's and before I knew it Cataplexy had come barging through the front door knocked my mug out of my hand and momentarily taken all the muscles from my legs and neck! 😡But Cataplexy comes with strong emotions... I guess socks are a very precious thing in our house hold!! But today I'm feeling good, I'm feeling much more awake and my eyes and head are managing to stay up for longer than an hour! Maybe because I've had a morning full of clients and I actually haven't stopped so in conclusion... EXERCISE HELPS!! It makes me feel great and no jab or condition can take that away from me so 'up yours' Narcolepsy - you'll never get me down! www.bellehutt.com 🇬🇧 #Narcolepsy #energeticnarcoleptic #personaltrainer #instafit #fitnessmotivation #exercisebenefits #boxing #victoriasport #vsx #victoriasecret #revolvesport #fitness #strong #motivation

[thisisannabellehutt]

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Energetic Narcoleptic - Exercises for us sleepy heads, when you feel your cataplexy and N is particularly bad one day give these exercises a go...slowly gets your heart rate up ❤️ making you feel more awake and releases endorphins to make you feel happier and more positive about the day. Let me know how you get on 😊 #bellehutt #energeticnarcoleptic #narcolepsy #cataplexy #narcolepsyUK #beginnersworkout

[energeticnarcoleptic]

Because laying down is our favourite position right?

Give this one a go to get the heart rate up and those abs burning, this one will help you feel more alert and awake ready to start the day positively!

Love Belle, your energetic narcoleptic xx