Welp, I had my neurology appointment today. I got to see the nurse practitioner again (they switch back and forth) and she’s super nice. She was talking about PML (the brain disease Progressive multifocal leukoencephalopathy) and I said that means “Pissing Myself Laughing” online. She started laughing and thanked me for telling her that, lol!
Anyway, she said my MRIs and symptoms don’t match up, to which I thought she was gonna say I was making things up or something. But she said she believes because I’m getting worse over time, I have Secondary Progressive MS. She talkied about (and gave me info on) Ocrevus infusions. I wasn’t too worried until she brought up the higher risk for breast cancer and I certainly don’t want THAT. She said regular screenings and all can catch it early if it happens but um....ick? So for now, I’m staying on Glatiramer Acetate (Copaxone) and was supportive of me giving medical marijuana a try to see if it eases some issues.
I had the JC virus bloodwork, Vitamin D and some other thing done after. I go back to see her in October, then to see the doc (boo) in January. She was surprised that I wasn’t already on disability and said she can tell I can’t work and that I shouldn’t have a problem getting it. Hope they talk to her next time!
Mom took me to the Olive Garden after, then to get us a soda at McD’s and they said they didn’t have Dr. Pepper, so I got Coke. We go to pick the drinks up and they’re pouring them from 2-liter bottles inter cups! We have those at home (I like fountain soda). I said I wanted an iced macchiato instead and they gave me a large instead of the $2 tiny cup so that was okay. But at least tell people you’re using bottled drinks!
Oh, I’m also going off Lexapro cos it wasn’t helping at all so I have to cut back on that and hope I don’t have a lot of issues with it like I had years ago. Luckily I was only on it for a few months this time and not 2 years. Fingers crossed!