Cloud computing & data protection legal issues
Experiences with Personal Genetics: A Family Journey
One Click Orgs: where we are going next
Cloud computing & data protection legal issues
Kuan Hon
EU data protection law issues raised by cloud computing. What information in the cloud is regulated as "personal data", and what isn't? Problems with anonymisation, encryption, sharding/chunking. Who's responsible for "personal data" in the cloud; who should be? Where's data stored, and should it matter? What about disclosure of cloud data to third parties eg law enforcement authorities? Which country's laws apply if there's a dispute?
Experiences with Personal Genetics: A Family Journey
Manuel Corpas
Direct-to-consumer genetics testing is a new field of commercial activity that makes genome screening available to the general public. Test results are delivered on line via a password-protected account contextualized with state of the art inferences about the individual's clinical features, disease risks and ancestry. Interpretation of results is limited to the information supplied by the provider and usually not accompanied with genetic counseling. Custodians of genetic information may not have the necessary skills to interpret results, let alone interpret results for others. This talk presents a personal journey of a genome bioinformatician acting as genetic counselor for his whole family, yet with no formal training to do so. Becoming custodian of genetic information for a whole family resulted in unanticipated situations and reactions that are hereby presented. As the utilization of these tests become ever more widespread, it is hoped that these experiences provide useful insights to new customers of genomic technology who try to understand their own genes. http://manuelcorpas.com/five-family-relatives-genome-download/
One Click Orgs: where we are going next
Francis Davey
The One Click Orgs is a project to automate the creation and support the decision making of organisations. In particular it aims to provide a platform where formal meetings can be avoided and decisions can be made via electronic consensus. Setting up a formal structure for an organisation can be a mental block for many small groups or businesses. Once created, the need to hold traditional 'meetings' can slow down organisational progress and get in the way of transparency. We hope One Click Orgs will make those problems a thing of the past. Version 1.0 for simple unincorporated associations was launched in March. I will discuss where we hope to go and what design and legal challenges we will need to overcome. http://www.oneclickorgs.com