#operakitten

[sablesigyn]

I will be planning my trip to India for surgical removal of endometriosis and endosalpingiosis shortly. Just got my letter of invitation from Dr. Mangeshikar for my visa application. I will be sharing my journey as an American going abroad for care.

[oodlyenough]

operakitten replied to your post: talking to @firstofoctober​ last night i did the...

you are a legend omg

i’m just giving the people (me) what they (i) want

[strongblacklesbian]

My Tumblr Crushes:

panlyra

operakitten

tinyconfusion

unnnqualified

gingergallifreyan

whovianmiss

deathlyfandoms

megabadbunny

blueboxesandtrafficcones

[sablesigyn]

The thing about living with a rare disease is, depression will visit you and overstay it's welcome. When you get a diagnosis, you get the name of your devil, but a rare diagnosis means doctors may not believe your diagnosis or, if they do, many won't know how to help. When you're told there is no cure you have to come to terms with the likelihood of lifelong symptoms. When you discover that there are little or no known treatment options, you must accept that you will struggle to find a physician willing to take the time to help and you will basically be a test subject. When you discover that no one is currently researching your disease and the only existing studies were done by people who are long dead, you struggle to stay positive about the future. Self-study, research and spreading awareness of the disease is all you can do.

My rare disease is Endosalpingiosis; a cell from the fallopian tubes where it shouldn't be. There is now a foundation in Wisconsin for it and you can register with CORDS, but currently no new studies/research. Symptoms may include pain, internal inflammation, scar tissue build-up, bloating, chronic fatigue, infertility, internal bleeding, etc. Patients frequently have other health issues that share these symptoms, like Endometriosis.

What rare disease do you or someone you know have? Share about it below or in tags :) Let's spread awareness!

[sablesigyn]

My tradition for Thanksgiving, is to tell people important to me that I am thankful for them. :)

[oodlyenough]

operakitten replied to your post: Rachel Amber and Alec Hardy for the ask meme!

god poor hardy x miller, s3 really did not do them justice as characters.

yeah they basically just tread water the whole season and even regress a little. the most insteresting thing about their relationship in the s2 finale was that they’d gotten so close and left it hanging, and then s3 is just like “lol he moved back and they work together now but they still can’t go for a pint don’t worry about it” like... ok

[oodlyenough]

operakitten replied to your post: also not to be a Sensitive Millennial but i do...

not to mention how incredibly awkward it is for ellie, the older white woman, to be lecturing a younger black woman about how she hasn’t struggled and has benefited from ellie’s prior sacrifices or w/e

yeah, broadchurch also cast like 4 black people in its entire 3 seasons and all of them were in antagonist roles lmfao ok

[oodlyenough]

operakitten replied to your post: broadchurch spoilers [[MOR] i don’t really have...

my initial reaction of ‘why won’t you leave mark’ turned to a delighted 'shit, you left mark???’ almost instantaneously I have never been so happy to be surprised

LMAO I’M SO PROUD. MY GIRL!!