Posted @withregram • @wegohealth If you’re fighting to raise awareness for those with rare diseases, connect with patient leaders like Jenny - @lifesapolyp. After being diagnosed with Familial Adenomatous Polyposis at a young age, she endured numerous surgeries, medical PTSD, and life-threatening medical experiences that gave her the purpose to become a patient advocate. Jenny says: “I realized that I didn’t want others with chronic illness to have the same experiences I have had and instead, would do what I could to help educate and empower others with their own illnesses.” To educate and support others, Jenny started her blog, and has since expanded her advocacy through collaboration with various organizations such as NORD. Today, she’s working on her first children’s book which will be published on Rare Disease Day in 2022. Leave a like to show your support for Jenny’s work in the rare community. #WEGOHealth #PatientLeader #chronicillness #chronicillnesswarrior #chronicillnesses #chronicillnessawareness #chronicillnessfighter #chronicillnesssucks #chronicillnessblogger #chronicillnesslife #chronicillnessart #chronicillnesscommunity #chronicillnesswarriors #familialadenomatouspolyposis #familialpolyposis #shortbowelsyndrome #raredisease #lifesapolyp https://www.instagram.com/p/CYuV2VNPtnH/?utm_medium=tumblr
